Please join us for the Congenital Hyperinsulinism International (CHI) Endocrine Society Dinner Meeting on June 4, 2011 from 6:30-9:30 PM at the Seaport Hotel in Boston, Massachusetts.
Dinner meeting participants will have an opportunity to speak informally on a range of topics with members of the CHI Scientific Advisory Group comprised of leading world specialists in the field of HI. Dr. Paul Thornton from Cook Children’s in Texas, Dr. Khalid Hussain from Great Ormond Street in London, and Drs. Charles Stanley and Diva De Leon-Crutchlow from the Children’s Hospital of Philadelphia will be among the physicians attending. Physicians and researchers will share information about their projects, research and practice.
This meeting is intended for adults and young adults with HI and HI parents. There is a great need for HI patients and parents of children with HI to be in a direct exchange with the physicians who treat the disorder in an educational setting. HI requires vigilant care. Left untreated HI can lead to poor neurological outcomes including mental retardation, learning disabilities, low vision or blindness, ADHD, and a host of other issues. It is paramount that those with HI and their caregivers receive up-to-date information on how best to care for the disease to optimize development and reduce poor neurological outcomes.
Physicians also learn a tremendous amount from HI patients, parents and caregivers. Exchanges between physicians, caregivers and patients in programs such as this one provide physicians with the kind of information necessary to propel their research further and improve their medical practice.
New ideas and practices are often generated when HI physicians and patients get together. The Endocrine Society Meeting in Boston is a wonderful opportunity to bring the HI community together for collaboration.
