Congenital Hyperinsulinism International

HI GR Steering Committee

Below is a listing of the HI Global Registry Steering Committee, including the role of each member and additional organization information where applicable.

Dr. Davelyn Hood, MD, Chairperson and Principal Investigator

President of the CHI Board of Directors
San Antonio, Texas


Julia Raskin (ex officio), Co-Investigator

CHI Executive Director
Glen Ridge, NJ, US


Isabel Calderón, Co-Investigator

Vice President of the CHI Board of Directors
Clarke City, Quebec, Canada


Dr. Paul Thornton, MD BCh, Scientific Advisor

Medical Director, Endocrine and Diabetes Program
Head of Hyperinsulinism Center, Cook Children’s Hospital, Fort Worth, Texas, US
https://www.cookchildrens.org/endocrinology/specialty-programs/Pages/hyperinsulinism-center.aspx


Prof. Dr. med. Klaus Mohnike, Scientific Advisor

Magdeburg University Hospital
Magdeburg, Germany
https://www.med.uni-magdeburg.de/en/


Dr. Diva D. De León-Crutchlow, MD, MSCE, Scientific Advisor

Director of the Congenital Hyperinsulinism Center, Children’s Hospital of Philadelphia,
Philadelphia, Pennsylvania, US
http://www.chop.edu/centers-programs/congenital-hyperinsulinism-center


Dr. Charles Stanley, MD, Scientific Advisor

Founder of the Congenital Hyperinsulinism Center, Children’s Hospital of Philadelphia
Philadelphia, Pennsylvania, US
http://www.chop.edu/centers-programs/congenital-hyperinsulinism-center


Dr. Jean-Baptiste Arnoux, Scientific Advisor

Necker Children’s Hospital
Paris, France
http://hopital-necker.aphp.fr


Sian Ellard, PhD FRCPath, Scientific Advisor

Consultant Clinical Scientist &Head of Molecular Genetics
Professor of Genomic Medicine, University of Exeter
Clinical Programme Director, South West NHS Genomic Medicine Centre

http://www.rdehospital.nhs.uk


Dr. Pratik Shah, MB BS, DCH, MRCPCH, PhD, Scientific Advisor

Consultant Paediatric Endocrinologist, Great Ormond Street Hospital for Children
London, UK
http://www.gosh.nhs.uk


Dr. Indi Banerjee, MBBS, MD, MRCPCH, Scientific Advisor

Consultant in Paediatric Endocrinology at the Royal Manchester Children’s Hospital (RMCH)
Clinical lead for the Northern Congenital Hyperinsulinism (NORCHI) service
Manchester, UK
http://www.cmft.nhs.uk/childrens-hospitals


Sarah Dearman, Patient Advocacy Advisor

Trustee of the Children’s Hyperinsulinism Fund
Watford, Hertfordshire, UK


Michelle Walkley, Patient Advocacy Advisor

Trustee of the Children’s Hyperinsulinism Fund
Corby, Northamptonshire, UK


Jacqueline Kraska (ex officio), Registry Manager

HIGR Registry Manager


Ulrike Seyfarth, Patient Advocate

Chairman

Kongenitaler Hyperinsulinismus e.V
http://www.hyperinsulinismus.de/


Rianna Sommers, Patient Advocate


Maria Paz Oviedo y, Patient Advocate


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