Congenital Hyperinsulinism International
               

HI GR Steering Committee

Below is a listing of the HI Global Registry Steering Committee, including the role of each member and additional organization information where applicable.

Dr. Davelyn Hood, MD, Chairperson and Principal Investigator
President of the CHI Board of Directors
San Antonio, Texas


Julia Raskin (ex officio), Co-Investigator
CHI Executive Director
Glen Ridge, NJ, US


Isabel Calderón, Co-Investigator
Vice President Emeritus of the CHI Board of Directors
Clarke City, Quebec, Canada


Tai Pasquini, PhD (ex officio), HIGR Manager
CHI Research and Policy Director
Holyoke, MA, US


Dr. Jean-Baptiste Arnoux, Scientific Advisor
Necker Children’s Hospital
Paris, France
http://hopital-necker.aphp.fr


Dr. Indi Banerjee, MBBS, MD, MRCPCH, Scientific Advisor
Consultant in Paediatric Endocrinology at the Royal Manchester Children’s Hospital
Clinical lead for the Northern Congenital Hyperinsulinism (NORCHI) service
Manchester, UK
http://www.cmft.nhs.uk/childrens-hospitals


Dr. Henrik Christesen, Scientific Advisor
Odense University Hospital, Odense, Denmark
https://en.ouh.dk/


Dr. Antonia Dastamani, Scientific Advisor
Consultant, Great Ormond Street Hospital for Children NHS
London, UK
https://www.gosh.nhs.uk/


Sarah Dearman, Patient Advocacy Advisor
Trustee of the Children’s Hyperinsulinism Fund
Watford, Hertfordshire, UK
https://www.hyperinsulinism.co.uk/


Dr. Diva D. De León-Crutchlow, MD, MSCE, Scientific Advisor
Director of the Congenital Hyperinsulinism Center, Children’s Hospital of Philadelphia,
Philadelphia, Pennsylvania, US
https://www.chop.edu/centers-programs/congenital-hyperinsulinism-center


Sarah Flanagan, Scientific Advisor
Associate Professor in Genomic Medicine and Sir Henry Dale Research Fellow, University of Exeter
Exeter, UK
https://www.rdehospital.nhs.uk/


Prof. Dr. med. Klaus Mohnike, Scientific Advisor
Magdeburg University Hospital
Magdeburg, Germany
https://www.med.uni-magdeburg.de/en/


Dr. Pratik Shah, MB BS, DCH, MRCPCH, PhD, Scientific Advisor
Consultant Paediatric Endocrinologist, Royal London Children’s Hospital, Barts Health NHS Trust
London, UK
https://children.bartshealth.nhs.uk/the-royal-london-hospital


Dr. Charles Stanley, MD, Scientific Advisor
Founder of the Congenital Hyperinsulinism Center, Children’s Hospital of Philadelphia
Philadelphia, Pennsylvania, US
https://www.chop.edu/centers-programs/congenital-hyperinsulinism-center


Dr. Paul Thornton, MD BCh, Scientific Advisor
Medical Director, Endocrine and Diabetes Program
Head of Hyperinsulinism Center, Cook Children’s Hospital, Fort Worth, Texas, US
https://www.cookchildrens.org/endocrinology/specialty-programs/Pages/hyperinsulinism-center.aspx


Michelle Walkley, Patient Advocacy Advisor
Trustee of the Children’s Hyperinsulinism Fund
Corby, Northamptonshire, UK
https://www.hyperinsulinism.co.uk/


Ulrike Seyfarth, Patient Advocate Chairman
Kongenitaler Hyperinsulinismus e.V
https://www.hyperinsulinismus.de/


Rianna Sommers, Patient Advocate


Maria Paz Oviedo y, Patient Advocate