Congenital Hyperinsulinism International

HI GR Steering Committee

Below is a listing of the HI Global Registry Steering Committee, including the role of each member and additional organization information where applicable.

Julie Raskin, Chairperson and Co-Investigator
CHI Executive Director
Glen Ridge, NJ, United States

Tai Pasquini, PhD, Principal Investigator
CHI Research and Policy Director
East Longmeadow, MA, United States

Isabel Calderón, Co-Investigator
Vice President Emeritus of the CHI Board of Directors
Clarke City, Quebec, Canada

Dr. Jean-Baptiste Arnoux, Scientific Advisor
Necker Children’s Hospital
Paris, France

Dr. Indi Banerjee, MBBS, MD, MRCPCH, Scientific Advisor
Consultant in Paediatric Endocrinology at the Royal Manchester Children’s Hospital
Clinical lead for the Northern Congenital Hyperinsulinism (NORCHI) service
Manchester, United Kingdom

Dr. Henrik Christesen, Scientific Advisor
Odense University Hospital, Odense, Denmark

Dr. Antonia Dastamani, Scientific Advisor
Consultant, Great Ormond Street Hospital for Children NHS
London, United Kingdom

Sarah Dearman, Patient Advocacy Advisor
Trustee of the Children’s Hyperinsulinism Fund
Watford, Hertfordshire, United Kingdom

Dr. Diva D. De León-Crutchlow, MD, MSCE, Scientific Advisor
Director of the Congenital Hyperinsulinism Center, Children’s Hospital of Philadelphia,
Philadelphia, Pennsylvania, United States

Sarah Flanagan, Scientific Advisor
Associate Professor in Genomic Medicine and Sir Henry Dale Research Fellow, University of Exeter
Exeter, United Kingdom

Prof. Dr. med. Klaus Mohnike, Scientific Advisor
Magdeburg University Hospital
Magdeburg, Germany

Dr. Pratik Shah, MB BS, DCH, MRCPCH, PhD, Scientific Advisor
Consultant Paediatric Endocrinologist, Royal London Children’s Hospital, Barts Health NHS Trust
London, United Kingdom

Dr. Charles Stanley, MD, Scientific Advisor
Founder of the Congenital Hyperinsulinism Center, Children’s Hospital of Philadelphia
Philadelphia, Pennsylvania, United States

Dr. Paul Thornton, MD BCh, Scientific Advisor
Medical Director, Endocrine and Diabetes Program
Head of Hyperinsulinism Center, Cook Children’s Hospital, Fort Worth, Texas, United States

Michelle Walkley, Patient Advocacy Advisor
Trustee of the Children’s Hyperinsulinism Fund
Corby, Northamptonshire, United Kingdom

Ulrike Seyfarth, Patient Advocate Chairman
Kongenitaler Hyperinsulinismus e.V

Rianna Sommers, Patient Advocate

Maria Paz Oviedo y, Patient Advocate