Congenital Hyperinsulinism International
                   

HI GR Steering Committee

Below is a listing of the HI Global Registry Steering Committee, including the role of each member and additional organization information where applicable.

Julie Raskin, Chairperson and Co-Investigator
CHI Executive Director
Glen Ridge, NJ, United States


Tai Pasquini, PhD, Principal Investigator
CHI Research and Policy Director
East Longmeadow, MA, United States


Isabel Calderón, Co-Investigator
Vice President Emeritus of the CHI Board of Directors
Clarke City, Quebec, Canada


Dr. Jean-Baptiste Arnoux, Scientific Advisor
Necker Children’s Hospital
Paris, France
http://hopital-necker.aphp.fr


Dr. Indi Banerjee, MBBS, MD, MRCPCH, Scientific Advisor
Consultant in Paediatric Endocrinology at the Royal Manchester Children’s Hospital
Clinical lead for the Northern Congenital Hyperinsulinism (NORCHI) service
Manchester, United Kingdom
http://www.cmft.nhs.uk/childrens-hospitals


Dr. Henrik Christesen, Scientific Advisor
Odense University Hospital, Odense, Denmark
https://en.ouh.dk/


Dr. Antonia Dastamani, Scientific Advisor
Consultant, Great Ormond Street Hospital for Children NHS
London, United Kingdom
https://www.gosh.nhs.uk/


Sarah Dearman, Patient Advocacy Advisor
Trustee of the Children’s Hyperinsulinism Fund
Watford, Hertfordshire, United Kingdom
https://www.hyperinsulinism.co.uk/


Dr. Diva D. De León-Crutchlow, MD, MSCE, Scientific Advisor
Director of the Congenital Hyperinsulinism Center, Children’s Hospital of Philadelphia,
Philadelphia, Pennsylvania, United States
https://www.chop.edu/centers-programs/congenital-hyperinsulinism-center


Sarah Flanagan, Scientific Advisor
Associate Professor in Genomic Medicine and Sir Henry Dale Research Fellow, University of Exeter
Exeter, United Kingdom
https://www.rdehospital.nhs.uk/


Prof. Dr. med. Klaus Mohnike, Scientific Advisor
Magdeburg University Hospital
Magdeburg, Germany
https://www.med.uni-magdeburg.de/en/


Dr. Pratik Shah, MB BS, DCH, MRCPCH, PhD, Scientific Advisor
Consultant Paediatric Endocrinologist, Royal London Children’s Hospital, Barts Health NHS Trust
London, United Kingdom
https://children.bartshealth.nhs.uk/the-royal-london-hospital


Dr. Charles Stanley, MD, Scientific Advisor
Founder of the Congenital Hyperinsulinism Center, Children’s Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
https://www.chop.edu/centers-programs/congenital-hyperinsulinism-center


Dr. Paul Thornton, MD BCh, Scientific Advisor
Medical Director, Endocrine and Diabetes Program
Head of Hyperinsulinism Center, Cook Children’s Hospital, Fort Worth, Texas, United States
https://www.cookchildrens.org/endocrinology/specialty-programs/Pages/hyperinsulinism-center.aspx


Michelle Walkley, Patient Advocacy Advisor
Trustee of the Children’s Hyperinsulinism Fund
Corby, Northamptonshire, United Kingdom
https://www.hyperinsulinism.co.uk/


Ulrike Seyfarth, Patient Advocate Chairman
Kongenitaler Hyperinsulinismus e.V
https://www.hyperinsulinismus.de/


Rianna Sommers, Patient Advocate


Maria Paz Oviedo y, Patient Advocate