HI Global Registry Steering Committee

Below is a listing of the HI Global Registry Steering Committee, including the role of each member and additional organization information where applicable.

Jean-Baptiste Arnoux, MD, MSc, Scientific Advisor
Necker Children’s Hospital
Paris, France

Indi Banerjee, MBBS, MD, MRCPCH, Scientific Advisor
Consultant in Paediatric Endocrinology at the Royal Manchester Children’s Hospital
Clinical lead for the Northern Congenital Hyperinsulinism (NORCHI) service
Manchester, United Kingdom

Henrik Christesen, MD, PhD, Scientific Advisor
Odense University Hospital, Odense, Denmark

Antonia Dastamani, MD, Scientific Advisor
Consultant, Great Ormond Street Hospital for Children NHS
London, United Kingdom

Diva D. De León-Crutchlow, MD, MSCE, Scientific Advisor
Director of the Congenital Hyperinsulinism Center, Children’s Hospital of Philadelphia,
Philadelphia, Pennsylvania, United States

Sarah Flanagan, PhD, Scientific Advisor
Associate Professor in Genomic Medicine and Sir Henry Dale Research Fellow, University of Exeter
Exeter, United Kingdom

Raphael Del Roio Liberatore Jr, MD, PhD, Scientific Advisor
Pediatric Endocrinologist at Ribeirão Preto Medical School, São Paulo University

Ribeirão Preto, SP Brazil


Sandra Melo, PsyD, Patient Advocate

Klaus Mohnike, MD, Scientific Advisor
Magdeburg University Hospital
Magdeburg, Germany

Maria Paz Oviedo y, Patient Advocate

Tai Pasquini, MPA, PhD, Principal Investigator
CHI Research and Policy Director
East Longmeadow, MA, United States

Irene Promoussas, PhD, Patient Advocate

Julie Raskin, Chairperson and Co-Investigator
CHI Executive Director
Glen Ridge, NJ, United States

Abigail Ridler, Patient Advocate

Ulrike Seyfarth, Patient Advocate Chairman
Kongenitaler Hyperinsulinismus e.V

Pratik Shah, MB BS, DCH, MRCPCH, PhD, Scientific Advisor
Consultant Paediatric Endocrinologist, Royal London Children’s Hospital, Barts Health NHS Trust
London, United Kingdom

Charles Stanley, MD, Scientific Advisor
Founder of the Congenital Hyperinsulinism Center, Children’s Hospital of Philadelphia
Philadelphia, Pennsylvania, United States

Paul Thornton, MB, BCh, MRCPI, DCh, Scientific Advisor
Medical Director, Endocrine and Diabetes Program
Head of Hyperinsulinism Center, Cook Children’s Hospital, Fort Worth, Texas, United States

Lora (Bartocci) Van Arsdell, PsyD, LCSW, Patient Advocate