CHI is reaching out to individuals, institutions, and organizations with a deep interest in people living with congenital hyperinsulinism to maximize participation in the HI Global Registry. The community includes but is not limited to the following:
Hospitals with congenital hyperinsulinism centers
http://www.charite.de/en/charite/
http://www.chop.edu/service/congenital-hyperinsulinism-center/home.html
http://www.cookchildrens.org/endocrinology/specialty-programs/pages/hyperinsulinism-center.aspx
http://www.gosh.nhs.uk/medical-conditions/search-for-medical-conditions/hyperinsulinism/hyperinsulinism-information/
http://www.hadassah-med.com/children-site/departments-and-units/pediatric-endocrinology-clinic.aspx
http://www.qldpaedendocrinology.com.au/dr-andrew-cotterill.html
http://hopital-necker.aphp.fr/
http://www.norchi.nhs.uk/
http://www.sickkids.ca/Endocrinology/What-we-do/index.html
http://www.medizin.uni-greifswald.de/ki_chir/index.php?L=1&id=565
Genetic Testing
University of Exeter Medical School, Exeter, UK
https://hyperinsulinismgenes.org
Athena Diagnostics
http://www.athenadiagnostics.com/view-full-catalog/c/congenital-hyperinsulinism-evaluation
Counsyl
https://www.counsyl.com/
The University of Chicago
http://dnatesting.uchicago.edu/tests/comprehensive-congenital-hyperinsulinism-panel
Rare disease and congenital hyperinsulinism patient groups, organizations, websites, and social media discussion groups
CHI Facebook Page
http://www.facebook.com/pages/Congenital-Hyperinsulinism-International/138424716215911
CHI Facebook Parents’ Forum
https://www.facebook.com/groups/136931403062072/
Children’s Hyperinsulinism UK Facebook Page
https://www.facebook.com/home.php#!/groups/137059853012784/
Global Genes
http://globalgenes.org
HICA on Facebook
https://www.facebook.com/pages/Hiperinsulinismo-Cong%C3%A9nito-Latinoam%C3%A9rica/201031993272665
Yahoo hyperinsulinisme
www.health.groups.yahoo.com/group/hyperinsulinisme/
NORD the National Organization for Rare Disorders
www.rarediseases.org
EURORDIS, Rare Diseases Europe
www.eurordis.org
The Children’s Hyperinsulinism Charity of the UK
http://www.hyperinsulinism.co.uk/
Hyperins Yahoo Internet Support Group
http://health.groups.yahoo.com/group/hyperins/
Hiper on Yahoo groups Spanish Yahoo Internet Support Group
http://es.groups.yahoo.com/group/hiper/
HICA Hiperinsulinismo congenito Argentina
http://www.hicongenito.com.ar/
Association des Hyperinsulinismes
http://www.hyperinsulinisme.com/
Association des Hyperinsulinismes on Facebook
www.facebook.com/#!/pages/Association-des-Hyperinsulinismes/163807533646422?fref=ts
Hyperinsulinismus
http://www.hyperinsulinismus.de/
CORD, Canadian Organization for Rare Disorders
www.raredisorders.ca
Regroupement québécois des maladies orphelines, RQMO Facebook page
https://www.facebook.com/#!/pages/Regroupement-qu%C3%A9b%C3%A9cois-des-maladies-orphelines/139256366104757?fref=ts
