CHI is pumped to announce we will be participating in the first Million Dollar Bike Ride sponsored by The Penn Medicine Center for Orphan Disease Research and Therapy (CODRT) on May 3, 2014. This event will raise awareness of rare diseases while raising funds for rare disease research. Our team, the “Raring to Go for CHI” team will raise funds for congenital hyperinsulinism research. The Penn Center will match at least $25,000, potentially up to $50,000, so this is really a fantastic opportunity to raise funds for research. This summer there will be a request for proposals from CODRT and researchers all over the world will be able to apply for the funds we raise on May 3. CODRT will fully administer the grant. All money raised goes directly to the grant. All administrative fees are being paid for by CODRT out of their own budget. 100% of the funds we raise will go to the researcher selected for the grant. Our team will be riding alongside many other wonderful teams. By riding with our counterparts, we will also deepen our connections to other rare disease groups.
The purpose of the CODRT/CHI Research Fund is to encourage innovative, pre-clinical or clinical studies designed to improve the diagnosis, therapy, or quality of life for those affected by congenital hyperinsulinism. The grant will be awarded to a researcher anywhere in the world, to initiate or augment a scientific, pre-clinical or clinical research study, the results of which could be used to obtain future funding from NIH, FDA or other funding agencies, or to attract a corporate sponsor. Evaluation of proposals will include careful consideration of value to the patient population, protocol design, objectiveness of parameters measured, and statistical evaluation proposed.”
The name of our team is “Raring to Go for CHI.” Each team has a captain. Our captain is the fantastic Leo Brown. Born with congenital hyperinsulinism, Leo is a wonderful young man in his twenties with a passion for writing about food culture. He has his own blog, www.newfoodculture.com. You must check it out. But before you do, read the instructions below about how to sign up for the Million Dollar Bike Ride “Raring to Go for CHI Team.” It looks complicated but is actually quite easy. Here is the link to Leo’s Instructions: The Million Dollar Bike Ride Raring to Go for CHI Sign Up Instructions