You’ve Come a Long Way Baby: Patient Families, Congenital Hyperinsulinism Specialists, and Advocates Meet in Italy

Congenital Hyperinsulinism International (CHI) held the Fifth Congenital Hyperinsulinism Family Conference at the NH Milano 2 Hotel in Segrate, Italy just outside of Milan on September 17 and 18, 2013. It was an intensive two days of presentations on many aspects of congenital hyperinsulinism, from the experience of living with the condition, to the latest … Read more

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Milan Conference Update

Planning for the Congenital Hyperinsulinism International Family Conference in Milan, Italy is going extremely well.   We have families coming from Italy, Spain, Dubai, Paraguay, France, Germany, Austria, the U.K., Canada, and the U.S.  We have 15 speakers from Germany, Austria, Canada, the UK, and the U.S.  Speakers include leading congenital hyperinsulinism  researchers, practitioners, and patient … Read more

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Gianfranco from Paraguay

We have linked articles from a newspaper in Paraguay for our Spanish readers.  Gianfranco, a boy from Paraguay, was diagnosed with congenital hyperinsulinism.  The newspaper story also includes an interview in Spanish with Dr. Diva DeLeon, Medical Director of the Congenital Hyperinsulinism Center at the Children’s Hospital of Philadelphia, where Gianfranco went for treatment.  Maria … Read more

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Long-Acting Octreotide for the Treatment of Congenital Hyperinsulinism

Dr. Khalid Hussain, a leading pediatric endocrinologist specializing in congenital hyperinsulinism (HI) presented information on the use of long-acting octreotide as a medical therapy for patients with HI at the Congenital Hyperinsulinism International Endocrine Society Meeting in Berkeley, California on June 15, 2013. Dr. Hussain presented information on published studies and on an ongoing study … Read more

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