On May 3, over 540 people rode their bikes in and around Philadelphia to raise money for rare disease research. In the process, the group of dedicated rare disease advocates raised over $1.4 million. Congenital Hyperinsulinism International (CHI) was one of 15 teams to participate in the race and the “Raring to Go for CHI” … Read more
A raw, biting and cold wind whipped through Trenton, the State Capitol of New Jersey, on March 13, the day Rare New Jersey organized important events in the Capitol to raise awareness of rare diseases. This unusual weather did not dampen the spirit or hinder people–some with significant physical and medical challenges–from making the trip … Read more
Sarah Bates is married to Kenn Bates, born with congenital hyperinsulinism (HI) and is the mother of Rachel, a child with the condition. Sarah is also Parent Research Coordinator for the CHI website. Sarah was recently at the Children’s Hospital of Philadelphia (CHOP) with her daughter who was taking part in a research study on … Read more
Due to the rarity of congenital hyperinsulinism, finding health care facilities and personnel with experience in treating patients with the condition can be a major challenge. Congenital Hyperinsulinism International (CHI) seeks to make that search easier with tools and information on leading centers of hyperinsulinism treatment and research. In addition to providing information on leading … Read more
Rianna Sommers, Senior at Muhlenberg College and Congenital Hyperinsulinism International Intern, produced a short documentary film, Hyperinsulinism, Patient Stories, with messages from children and their families living in various locales around the world with congenital hyperinsulinism (HI). The film includes excerpts produced by the families themselves describing the experience of living with the condition, in … Read more