Wishing everyone in the rare disease community a Happy Rare Disease Day! Today is Rare Disease Day and it is celebrated around the world on the last day of February. For those with rare diseases, Rare Disease Day is the most important day of the year. It is a day to celebrate everyone who has … Read more
February is an exciting time for hyperinsulinism (HI) and rare disease communities, as it marks Rare Disease Month and Rare Disease Day. Rare Disease Day – on or around the leap day (the rarest day of the year!) – has been an opportunity for our community to share their challenges and triumphs, to offer support … Read more
Congenital Hyperinsulinism International (CHI) will be working with a documentary film crew to produce a short film on living with congenital hyperinsulinism. The purpose of the film is to increase awareness of the condition. The film will be part of our public awareness campaign. This is a casting call for the film! We are looking … Read more
We are thrilled to share with you all a bit about our new Development Director, Pamela Weber-Leaf! Continue reading to learn about Pamela’s unique work experiences and get a glimpse into her life. Welcome to the team, Pamela! I’m so excited to have joined CHI! Becoming the organization’s Development Director allows me to weave the … Read more
We are thrilled to welcome Kristen Rohli, PhD as our new Research Manager! Kristen’s impressive educational experience working in biochemistry, psychology, and genetics makes her an excellent addition to our research team. Continue reading to learn more about Kristen! I grew up in Baton Rouge and chose to go to Louisiana State University (LSU) for … Read more