In honor of Rare Disease Day, February 28, 2015, Congenital Hyperinsulinism International (CHI) will be holding the inaugural Sugar Shindig in Austin, Texas in support of patients living with congenital hyperinsulinism (HI). This year, the theme of World Rare Disease Day is “Living with a Rare Disease: Day by Day, Hand in Hand.” The CHI … Read more
Read about how the Pennsylvania McLaughlin Family is fundraising for Congenital Hyperinsulinism International while raising awareness. Julie Raskin: I am so impressed that you and Jack have taken the initiative to organize “Dress Down Days” at school to benefit Congenital Hyperinsulinism International, the organization dedicated to improving the lives of patients with congenital hyperinsulinism. You … Read more
No plans for Rare Disease Day? Get a ticket to attend A Very Special Cocktail Party Everything about the evening will be unique and “rare” • The date: February 29, Leap Day and Rare Disease Day! • The house: A one of a kind Victorian. • The hors d’oeurvres: Exquisitely prepared by Montclair New … Read more
New Jersey Artist, Wendy Letven, has designed a line of t-shirts to help us raise awareness of HI. The shirts are amazing and can be purchased through Cafepress: http://www.cafepress.com/Congenitalhyperins. They are available in various styles and designs, and in sizes ranging from onesies (they are so cute!) to extra, extra large. It is our hope … Read more
Rare Disease Day is February 28, 2011. This is our day to grab the spotlight and focus the world’s attention on rare diseases, specifically, our disease: Congenital Hyperinsulinism (HI). We have 45 days to plan our strategy so we can make the most of this day. I had the pleasure of visiting the National Organization … Read more