HI Global Registry – Congenital Hyperinsulinism International

Natural History Repeats Itself

March 9, 2024October 10, 2019 by Julie Raskin

Natural History Repeats Itself: My journey promoting and participating in natural history studies When I first heard the words “natural history study,” the only thing that came to mind was the Museum of Natural History – and I had no idea if the two “natural histories” were related in any way. Now, I understand why … Read more

Today is HI Global Registry Launch Day!

March 9, 2024October 8, 2018 by Julie Raskin

Since 2005, Congenital Hyperinsulinism International has been sharing the patient experience to advance the scientific understanding of congenital hyperinsulinism (HI). We have shared the patient story on our website, at meetings, and on social media with story after story of what it is like to live with the condition. As our focus on awareness has … Read more