The following is shared by Anna Nicolaou: For individuals living with hyperinsulinism (HI), nutrition is not optional, but a medical necessity; a lifeline and access to proper nutritional guidance can mean the difference between stability and crisis. The right foods, the right timing, and the right support can prevent dangerous hypoglycaemic episodes and protect long-term … Read more
The following post is by Kimberley Pfaff: In most cases, a sibling bond is created right as the youngest is born. They can quickly become best friends, and in the end will share more support with one another than with their own parents. For Ricky, my son born with HI, his brother Mickey wasn’t only … Read more
The following has been shared by Anna Nicolaou: A diagnosis is just a label but the life behind it is a realty that only a few can understand. For me that reality is Congenital Hyperinsulinism; a journey marked by relentless resilience and one which completely transformed not just my life but also the lives of … Read more
“Did you know that in the old days, they used to remove 98% of the pancreas?!” This quote comes from Dr. Adzick’s imagined future, a world where babies born with Hyperinsulinism (HI) have access to more advanced medications. A world where they no longer endure invasive surgeries or harsh side effects from current therapies. He … Read more
(The following is shared by HI parent Felicia Huffman:) When my daughter, Jilani Rose, was diagnosed with congenital hyperinsulinism (HI) as a baby, our world changed overnight. She underwent a 98% pancreatectomy — a lifesaving procedure that came with a lifelong consequence: the development of insulin-dependent diabetes. We’ve come to view this transition through both … Read more