The following is a guest blog post by Anna: Reflections on the Congenital Hyperinsulinism International Community: Why the family conferences matter This year, I was not able to attend the annual family conference in France, and although I was away, I felt deeply connected to the conversations and meetings that occurred. These conferences have helped … Read more
The following is shared by HI mother Maureen: Mother’s Day comes around quietly each year, in a beautiful time of the year, spring. If all is well, it does not ask too much from us as mothers, but it always invites me into a moment of reflection. Caring for a child with HI is not … Read more
The following is shared by Anna Nicolaou: For individuals living with hyperinsulinism (HI), nutrition is not optional, but a medical necessity; a lifeline and access to proper nutritional guidance can mean the difference between stability and crisis. The right foods, the right timing, and the right support can prevent dangerous hypoglycaemic episodes and protect long-term … Read more
The following post is by Kimberley Pfaff: In most cases, a sibling bond is created right as the youngest is born. They can quickly become best friends, and in the end will share more support with one another than with their own parents. For Ricky, my son born with HI, his brother Mickey wasn’t only … Read more
The following has been shared by Anna Nicolaou: A diagnosis is just a label but the life behind it is a realty that only a few can understand. For me that reality is Congenital Hyperinsulinism; a journey marked by relentless resilience and one which completely transformed not just my life but also the lives of … Read more