Last year, Rianna Sommers, a veteran of many Congenital Hyperinsulinism International (CHI) conferences and a former star CHI intern started her first post-college professional job at Safe Passage Neuromonitoring (SPN). Early on in her tenure at the company, Rianna attended her first SPN staff retreat at the idyllic Mohonk Mountain House in Upstate New York. … Read more
The Second Annual Sugar Soiree, in support of Congenital Hyperinsulinism International (CHI), took place in Hillsborough, California, on Friday, November 13, 2015. It was an evening dedicated to raising hyperinsulinism awareness and funds for research, education, and support. The event took place at Carolands Chateau, a stunning mansion designed by renowned French Architect, Ernest Sanson. … Read more
In honor of Rare Disease Day, February 28, 2015, Congenital Hyperinsulinism International (CHI) will be holding the inaugural Sugar Shindig in Austin, Texas in support of patients living with congenital hyperinsulinism (HI). This year, the theme of World Rare Disease Day is “Living with a Rare Disease: Day by Day, Hand in Hand.” The CHI … Read more
Rianna Sommers, Senior at Muhlenberg College and Congenital Hyperinsulinism International Intern, produced a short documentary film, Hyperinsulinism, Patient Stories, with messages from children and their families living in various locales around the world with congenital hyperinsulinism (HI). The film includes excerpts produced by the families themselves describing the experience of living with the condition, in … Read more
Earlier this year I had the opportunity to attend the Genetic Diseases of Children Conference in New York City sponsored by the New York State Department of Health. What was new and different about this meeting was the mix of people attending: researchers, academics, PATIENT ADVOCATES, government officials, and drug company representatives were all invited … Read more