BSL TESTING AND PUMP SUPPLIES AVAILABLE TO HI PATIENTS IN AUSTRALIA AT SUBSIDIZED PRICES

While attending the APEG (Australian Paediatric Endocrine Group) meeting in Australia, CHI board member, Margaret Maher, learned that some HI patients in Australia were being refused a standard subsidy for diabetics for the purchase of blood sugar level (BSL) testing supplies. On behalf of the denied patients, Margaret entered into discussions with governmental agencies responsible … Read more

Share

SAVE THE DATE: HI FAMILY CONFERENCE MARCH 17-18, 2012

SAVE THE DATE Congenital Hyperinsulinism Family Conference March 17-18, 2012 Philadelphia, Pennsylvania Congenital Hyperinsulinism International (CHI), in conjunction with the Children’s Hospital of Philadelphia (CHOP), invites you to attend the fourth Congenital Hyperinsulinism Family Conference. Conference attendees will learn about recent advances in the diagnosis and treatment of congenital hyperinsulinism (HI) from experts in the … Read more

Share

The CHI Endocrine Society Dinner in Boston

Last Saturday, June 4, Congenital Hyperinsulinism International (CHI) held a dinner meeting in Boston at the Seaport Hotel bringing together families living with congenital hyperinsulinism (HI), leading world experts in the field of HI and other endocrine fields, and representatives from pharmaceutical and genetic testing companies. The meeting was generously sponsored by Teva Pharmaceuticals and … Read more

Share

Endocrine Society Dinner Meeting

Please join us for the Congenital Hyperinsulinism International (CHI) Endocrine Society Dinner Meeting on June 4, 2011 from 6:30-9:30 PM at the Seaport Hotel in Boston, Massachusetts. Dinner meeting participants will have an opportunity to speak informally on a range of topics with members of the CHI Scientific Advisory Group comprised of leading world specialists … Read more

Share

Today is Rare Disease Day

116 people ordered Congenital Hyperinsulinism International T-shirts to wear today, Rare Disease Day, 2011. The fabulous “Be my sugar.” T-shirts, which are available at http://www.cafepress.com/Congenitalhyperins, were sported in many places around world, in English, French, and Spanish, from Australia, to Canada, to the U.S. We are looking forward to hearing all of your stories about … Read more

Share