The HI Global Registry 2020 Annual Report is now available and provides insight into the HI experience as reported by participants of the HI Global Registry (HIGR). HIGR is the first global patient-powered congenital hyperinsulinism patient registry and consists of a series of thirteen surveys made up of questions related to a patient’s HI experience over their lifetime. The analysis and descriptive statistics shared in the report are based on the responses that participants provided from HIGR’s launch in October 2018 through February 2020. This includes individuals living in 45 countries and participants ranging from just a few weeks of age to 58 years old.
Click here see the 2020 Report, or click here to learn more about the Registry.
