HI Global Registry Community

CHI is reaching out to individuals, institutions, and organizations with a deep interest in people living with congenital hyperinsulinism to maximize participation in the HI Global Registry. The community includes but is not limited to the following:

Hospitals with congenital hyperinsulinism centers

hospital that treats congenital hyperinsulinism
Charitie Hospital, Berlin, Germany
http://www.charite.de/en/charite/
hospital that treats congenital hyperinsulinism
Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania, USA
http://www.chop.edu/service/congenital-hyperinsulinism-center/home.html
Hyperinsulinism Center
center for treating hyperinsulinism
facility for treatment of congenital hyperinsulinism
hyperinsulinism specialist
Mater Children’s Hospital, South Brisbane, Australia
http://www.qldpaedendocrinology.com.au/dr-andrew-cotterill.html
Necker Enfants Malades
Necker Hospital, Paris, France
http://hopital-necker.aphp.fr/
congenital hyperinsulinism service
NORCHI, Northern Congenital Hyperinsulinism Service, Manchester, England
http://www.norchi.nhs.uk/
treatment for congenital hyperinsulinism
center for congenital hyperinsulinism

Genetic Testing


Rare disease and congenital hyperinsulinism patient groups, organizations, websites, and social media discussion groups

The Children’s Hyperinsulinism Charity of the UK
http://www.hyperinsulinism.co.uk/

Hyperins Yahoo Internet Support Group
http://health.groups.yahoo.com/group/hyperins/

Hiper on Yahoo groups Spanish Yahoo Internet Support Group
http://es.groups.yahoo.com/group/hiper/

HICA Hiperinsulinismo congenito Argentina
http://www.hicongenito.com.ar/

Association des Hyperinsulinismes
http://www.hyperinsulinisme.com/

Association des Hyperinsulinismes on Facebook
www.facebook.com/#!/pages/Association-des-Hyperinsulinismes/163807533646422?fref=ts

Hyperinsulinismus
http://www.hyperinsulinismus.de/

CORD, Canadian Organization for Rare Disorders
www.raredisorders.ca

Regroupement québécois des maladies orphelines, RQMO Facebook page
https://www.facebook.com/#!/pages/Regroupement-qu%C3%A9b%C3%A9cois-des-maladies-orphelines/139256366104757?fref=ts

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