Information for the Letter-Writer

Frequently Asked Questions
For Medical Professionals
Campaign Home Page

Thank you for choosing to participate in the Glucose is a Vital Sign Letter-Writing Campaign. By sharing your family’s experience, you are helping healthcare providers and hospitals better understand the lifelong impact that early recognition and treatment of hypoglycemia can have on babies born with congenital hyperinsulinism (HI).

This page is designed to guide you through the letter-writing process and is where you can access your Jotform letter template.

How to participate

Before you begin, please take a few minutes to:

  • Read the campaign information on the main campaign webpage if you haven’t done so already.
  • Identify which letter template best matches your experience (template options are in the blue buttons below).
  • Gather the names and emails of hospital contacts that you would like to send the letter to. We have tips below on where to find this information if you do not already have it, as well as a list of volunteers who might be able to help you find these contacts.
  • Gather any information you would like to include about your child’s diagnosis journey in your letter. We suggest a length of 1-3 paragraphs.
  • Below are some possible details you might want to include in your story:
    • Describe what happened at the hospital when your child was born
    • Describe what actions were taken by the hospital in response to hypoglycemia
    • If your child was diagnosed after discharge, describe when your child presented with symptoms, what prompted you to reach out for medical help, and how your child was diagnosed.
    • Share any neurodevelopmental challenges your child has, if applicable

Please note that you do not have to share any information that you are uncomfortable sharing.

How to complete your letter

Once you have this information collected, you can proceed to fill out your letter:

  1. Select the birth experience letter template that best matches your child’s story.
  2. Fill in the fields in the Jotform letter template. You can preview your personalized letter, generated from your responses, below the fillable fields on the same page.
  3. If you need to pause and finish your letter later, you can click the SAVE button at the bottom of the page to receive a link to complete it later.
  4. Choose whether CHI may contact you to include excerpts from your letter in materials for advocacy purposes.
  5. Once you are happy with your letter, you can send it to the hospital contact’s email right from Jotform by pressing SEND button at the bottom of the webpage.You will also receive a confirmation email with your PDF letter attached. Additionally, CHI will be notified when a letter is created and sent.
  6. If you choose, share any follow-up or response with CHI.

Remember: You can save your work as you go! A link to your form will be sent to your email. By selecting the “SEND” button, the letter will automatically be sent to the birthing center contact’s email address.

To begin participating, please select the scenario that best describes your experience from the buttons below:

Letter 1: HI was diagnosed in a timely manner, and your child received appropriate care
Letter 2: Blood glucose was checked, but your child was discharged without an HI diagnosis
Letter 3: Blood glucose was not checked, and no concerning symptoms were recognized before discharge
Letter 4: Blood glucose was not checked, and a parent or family member suspected something was wrong

Who to send the letters to:

We encourage sending letters to various contacts in different roles at the birthing hospital. Each person should receive a separate letter. After sending it to one recipient, return to the letter campaign page to draft a new one.

Letters may be sent to professionals in the following roles:

  • Medical Director of the newborn nursery
  • Charge Nurse of the newborn nursery
  • Vice President of Nursing who oversees newborn nursing, NICU, labor and delivery
  • Nursing Director of the hospital
  • Chairperson of Pediatrics
  • Chairperson of Neonatology
  • Hospital Safety Committee
  • NICU Safety Committee
  • Department of Pediatrics Safety Committee
  • Head of Pediatric Residency
  • CEO of the hospital

  • Your preferred search engine, such as Google, likely has an AI feature at the top of search results (Gemini for Google, for example). If this is the case for your search engine, you can simply search for the name of the hospital and the position you are looking for. Example: Search “[Hospital Name] Director of Labor and Delivery name and email”
  • Your hospital may also have a “find a provider” section, where you can scroll through specific departments’ clinicians on staff.
  • Rather than finding a specific clinician’s contact, there may also be a department email address (for Labor and Delivery, OBGYN, etc.) an administrative assistant’s contact, or a community relations office who would likely circulate your letter to relevant clinicians.

Each hospital has its own email address structure. For example, Dr. Jane Doe could have the email addresses Jane.Doe@hospitalname.org, JDoe@hospitalname.com, Jane_Doe@hospitalname.edu, or other combinations. You may be able to find your hospital’s email structure by asking the question in your preferred search engine, the media contact listed in a press release by the hospital, or by finding any other email within the hospital’s system.

Many hospitals and clinicians also partner with universities. If you know of the university that your hospital and doctor are connected to, you can search “[Doctor’s name] [University in question] faculty directory”. Faculty directory pages frequently list direct email addresses even when hospital profiles do not.

If you held onto your discharge papers from the hospital, there may be contact information within those documents.

Additionally, when you search for the clinician’s name, you may find published research that they have contributed to. Any publicly available study should include an email address for the contributing authors within the author information or correspondence sections.

Many hospitals have a portal where current or former patients can securely submit messages to their care team, the Patient Safety Committee, or other hospital administrators. This portal may be accessible either through a log-in account or on the hospital’s home page. In some instances, the contact page of the hospital’s website will have a free text box where you can directly send a message.

If this is the case for you, and you would like to send your letter via a secure portal of your hospital, we ask that you please complete the Jotform letter as instructed. You can then copy the text of the letter (which will be emailed to you as a PDF) and paste the letter into the hospital portal. Some portals may allow you to upload documents, as well, in which case you can download the pdf from your email and upload it to the portal.

Participation in the Glucose is a Vital Sign Letter-Writing Campaign, facilitated by Congenital Hyperinsulinism International (CHI), is voluntary. You are not required to answer every question on the form and may skip anything you're uncomfortable sharing.

The campaign form, hosted on Jotform, collects the information you enter to generate a personalized PDF letter. This may include personal and health-related information about you or your child, such as diagnosis history, treatment experience, or developmental outcomes if you choose to include them.

By checking the consent box and submitting the form, you consent to CHI and Jotform processing this information to generate and send your letter to the recipient(s) you choose, send you a copy of the completed letter, administer and evaluate the campaign's reach and impact, and contact you about related advocacy opportunities — but only if you opt in to that follow-up.

CHI does not keep a separate archive of submitted letters. Submissions are retained within Jotform and used only for the purposes described above, for as long as needed to administer the campaign.

Any reports or summaries CHI produces will use de-identified data. We will not publish or share your name, your child's name, your letter, or quotations from it without first contacting you and obtaining your separate permission.

You may withdraw your consent at any time. Participants in the European Economic Area, the United Kingdom, or other regions with data protection requirements may contact CHI's Data Protection Officer at jschmitt@congenitalhi.org with questions about their personal information, consent, or privacy rights.

For more information, please review CHI's Privacy Policy and Terms of Use.

Our frequently asked questions page may answer any questions you have related to how the letter templates work, how to find hospital contact information, etc.

Additionally, CHI staff and country captains from around the world who are available to assist you in this process should there be any difficulty. CHI and the country captains can also be a great resource for any educational follow-up with your birthing hospital.

Current country captains include:

LightCure and The European Union

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