Please find 32 presentations given at the 2018 Family Conference in Athens:
The Role of Insulin and Mechanism of Disease in Congenital Hyperinsulinism
A presentation by Indi Banerjee from the Royal Manchester Children’s Hospital.
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Recommendations for Evaluation and Management of Hypoglycemia in Neonates, Infants, and Children
A presentation by Dr. Paul Thornton, MD, Medical Director of the Hyperinsulinism Center at Cook Children’s Medical Center.
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Genetics of CHI
A presentation by Sian Ellard, Consultant Clinical Scientist of Professor of Genomic Medicine at the University of Exeter Medical School.
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Feeding Issues and Nutrition
A presentation by Clare Gilbert, Clinical Nurse Specialist at Great Ormond Street Hospital for Children.
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Congenital Hyperinsulinism – Treatment
A presentation by Senthil Senniappan, MD, FRCPCH, PhD, a Consultant Paediatric Endocrinologist & Honorary Senior Lecturer at the Alder Hey Children’s Hospital, Liverpool, UK.
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Medical Treatment for Congenital HI, Part 1
A presentation by Charles A. Stanley, MD, from the Children’s Hospital of Philadelphia.
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Helena’s CHI Story: Congenital Hyperinsulinism Triumphs and Challenges
A presentation by a family sharing their triumphs and challenges with HI.
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Growing Up: Managing HI through the teen years.
A presentation by a young woman named Connie detailing her experiences growing up with HI.
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Managing HI at School and Daycare
A presentation by parent Cristina Pindado.
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What’s new with devices, glucometers and Continuous Glucose Monitoring systems
A presentation by Madhini Sivasubramanian from the Great Ormond Street Hospital for Children.
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Sick Day Management – How to manage intercurrent illness?
A presentation by Dr. Sebastian Kummer, Department of General Pediatrics, Neonatology and Pediatric Cardiology at the University Children’s Hospital Düsseldorf, Germany.
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The psychological burden of congenital hyperinsulinism
A presentation by Clare Gilbert and Hannah Antell from the Great Ormond Street Hospital for Children.
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Coping Strategies for Managing the Stress of Caring for Children with Complex Medical Needs
A presentation by Irene Promussas, PhD.
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The Psychological Burden of Congenital Hyperinsulinism: A Global Insult to the Family
A presentation by Julie Raskin, Executive Director, Congenital Hyperinsulinism International.
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Neurological Impact of Congenital Hyperinsulinism
A presentation by Diva De Leon of the Children’s Hospital of Philadelphia and Indi Banerjee of the Royal Manchester Children’s Hospital.
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Transition from Paediatric to Adult care in Congenital Hyperinsulinism
A presentation by Dr. Pratik Shah, Consultant Paediatric Endocrinologist and Honorary Clinical Lecturer from the Great Ormond Street Hospital for Children & UCL Great Ormond Street Institute of Child Health.
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Recent Research – A new form of syndromic CHI?
A presentation by Dr. Sebastian Kummer, Department of General Pediatrics, Neonatology and Pediatric Cardiology at the University Children’s Hospital Düsseldorf, Germany.
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CHI: A continuous challenge
A presentation by Henrik Christesen, Professor, PhD, MD, International Hyperinsulinism Centre, Hans Christian Andersen Children’s Hospital, Odense University Hospital, Denmark.
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Congenital Hyperinsulinism Case Studies: variability of phenotype and response to medical therapy
A presentation by Evelina Panou, Division of Endocrinology, Metabolism and Diabetes,
First Department of Pediatrics, Medical School, National and Kapodistrian University of Athens, “Agia Sophia” Children’s Hospital, Athens, Greece.
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The HI Global Registry: Patient-Powered Research Connecting All HI Stakeholders
A presentation by Davelyn Hood, MD, President of the Board of Directors, Congenital Hyperinsulinism International.
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Participation and Empowerment of Kids with Congenital Hyperinsulinism
A presentation by Ulrike Seyfarth, President, Kongenitaler Hyperinsulinismus e.V., Berlin, Germany.
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Research at Manchester, UK
A presentation by Indi Banerjee and Mark Dunne, University of Manchester, Royal Manchester Children’s Hospital.
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Cook Children’s Hyperinsulinism Program
A presentation by Paul Thornton, MD, Cook Children’s Health Foundation.
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Hyperinsulinism Research
A presentation by Charles A. Stanley, MD, Congenital Hyperinsulinism Center, The Children’s Hospital of Philadelphia.
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Use of Long-Acting Somatostatin Analogue (Lanreotide) in three children with Focal Forms of Congenital Hyperinsulinaemic Hypoglycaemia
A presentation by Dr. Antonia Dastamani, Clinical Fellow in Congenital Hyperinsulinism,
Great Ormond Street Hospital.
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Congenital Hyperinsulinism Awareness, Family Support, Research
A presentation by Julie Raskin, Executive Director, Congenital Hyperinsulinism International.
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Patients with Congenital Hyperinsulinism in resource limited settings – Challenges for the physicians
A presentation by Nino Kheladze, MD, M. Iashvili Children’s Central Hospital, Tbilisi, Georgia.
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2018 Congenital Hyperinsulinism Family Conference Industry Highlight Section
A presentation by Klara Owen, MD, PhD., MSc., Zealand Pharma A/S, Denmark.
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Post-prandial hyperinsulinaemic
hypoglycaemia after oesophageal surgery in children
A presentation by Dr. Antonia Dastamani, Clinical Fellow in Congenital Hyperinsulinism, Great Ormond Street Hospital.
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Warm greetings from Dr. Winfried Barthlen, sent from Greifswald, Germany
Dr. Winfried Barthlen, Chief of Pediatric Surgery in Greifswald, Germany, was unable to attend the conference in Athens.
He sent us this presentation and requested we post it as a resource.
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CHI 2018 Athens– Israeli Experience use of pumps and glucose sensors and some new thoughts
A presentation by David Zangen MD, Division of Pediatric Endocrinology, Hadassah Hebrew University Medical Center, Jerusalem, Israel.
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Liquid Stable Glucagon for Congenital Hyperinsulinism
A presentation by Khaled Junaidi, MD, Medical Director at Xeris Pharmaceuticals, Inc.
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