Julie Raskin 
CHI has a new YouTube music video. Singer songwriter Janna Pelle performs her original song, “Down and Up” with children who attended the Congenital Hyperinsulinism Family Conference at Cook Children’s in Fort Worth, TX last spring. The video is lots of fun and a great way for kids to introduce congenital hyperinsulinism to friends and … Read more
52 Heroic doctors, brilliant researchers, courageous parents, and a brave adult with HI spent two days in Lisbon, Portugal from February 28-March 2 working intently on making the future better for people with hyperinsulinism. The CHI Collaborative Research Network is a dynamic international collaboration of researchers, clinicians, and expert patient and caregiver advocates working together … Read more
Wishing everyone in the rare disease community a Happy Rare Disease Day! Today is Rare Disease Day and it is celebrated around the world on the last day of February. For those with rare diseases, Rare Disease Day is the most important day of the year. It is a day to celebrate everyone who has … Read more
February is an exciting time for hyperinsulinism (HI) and rare disease communities, as it marks Rare Disease Month and Rare Disease Day. Rare Disease Day – on or around the leap day (the rarest day of the year!) – has been an opportunity for our community to share their challenges and triumphs, to offer support … Read more
Congenital Hyperinsulinism International (CHI) will be working with a documentary film crew to produce a short film on living with congenital hyperinsulinism. The purpose of the film is to increase awareness of the condition. The film will be part of our public awareness campaign. This is a casting call for the film! We are looking … Read more