Whitney and Bohannon’s journey with HI: HIGR Ambassador Post

HIGR Ambassador testimonial

Whitney, one of our HIGR Ambassadors, shares with us the following story. “If you had asked me 10 years ago what a rare disease was, I wouldn’t have had an answer for you. My youngest, Bohannon, was diagnosed in 2014 at 3 weeks of age with the diffuse form of congenital hyperinsulinism. She inherited 2 … Read more

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Down and Up

CHI YouTube Music video

CHI has a new YouTube music video. Singer songwriter Janna Pelle performs her original song, “Down and Up” with children who attended the Congenital Hyperinsulinism Family Conference at Cook Children’s in Fort Worth, TX last spring. The video is lots of fun and a great way for kids to introduce congenital hyperinsulinism to friends and … Read more

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Researchers, Clinicians, and Patient Advocates Gather in Lisbon, Portugal to Chart a Better Future for People Living With Congenital Hyperinsulinism

CHI Portugal Conference

52 Heroic doctors, brilliant researchers, courageous parents, and a brave adult with HI spent two days in Lisbon, Portugal from February 28-March 2 working intently on making the future better for people with hyperinsulinism. The CHI Collaborative Research Network is a dynamic international collaboration of researchers, clinicians, and expert patient and caregiver advocates working together … Read more

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