Julie Raskin 
The following was shared by CHI Development Director Pam Weber-Leaf: CHI had a chance to raise hyperinsulinism (HI) awareness and connect with our peers in the rare disease space all over the Northeast corridor of the United States last month as part of international Rare Disease Day (RDD) 2026 observances. On Feb. 20, I had … Read more
Blog post by HI father Saqib: I am writing to share the wonderful achievement of my daughter, Abeera, who has been bravely dealing with hyperinsulinemia since birth. She has secured first position in her class. This accomplishment is truly a blessing and a very proud moment for our family. Abeera was diagnosed when she was … Read more
The following has been shared by Anna Nicolaou: A diagnosis is just a label but the life behind it is a realty that only a few can understand. For me that reality is Congenital Hyperinsulinism; a journey marked by relentless resilience and one which completely transformed not just my life but also the lives of … Read more
The following is a guest post by Felecia Nugent: Hi! My name is Felecia and I am 35 years old living with HI! I was diagnosed with HI when I was 28 yrs old, after my daughter Hannah was born and diagnosed with HI. I was a very sick child that was misdiagnosed with hypoglycemia … Read more
This is a guest blog post from Shohei Matsumoto of the Japan Hyperinsulinism Patients and Families Association (JHIA). “In order to secure support from the government for the challenges faced by families of patients with hyperinsulinemic hypoglycemia, our association submitted a “Request for Research on Hyperinsulinemic Hypoglycemia” to the Minister of Health, Labour and Welfare. … Read more