Julie Raskin Isabel Calderón, a member of the CHI Board of Directors from Canada, attended the Annual Congress of the Canadian Organization for Rare Disorders (CORD) held in Ottawa on October 1-2, 2010. A full two days of presentations and workshops made up the agenda. About 120 representatives from different Canadian rare disorder associations and individual patients … Read more
Last month I posted one of our brochures here on the blog. This month I am happy to announce that all of our CHI brochures are now available through the Documents link on the left hand side our main web site. Direct Link
Congenital Hyperinsulinism International (CHI) held the third Congenital Hyperinsulinism Family Conference on June 18th and 19th in San Diego. About 50 people gathered to learn together, share experiences and brainstorm about how to continue to spread awareness about congenital hyperinsulinism (HI) and advocate for people living with HI. The world’s leading specialists were among the … Read more
We would like to invite everyone to take a look at one of our pamphlets. We call this one the First Responders pamphlet. It targets the kinds of health care professionals that are the first to see a patient with hyperinsulinism who may not be familiar with the signs and symptoms. You are welcome to … Read more
On a trip in June to Geneva, Switzerland for his day job, Matt Hopkins (President of CHI) spent a day in Paris, France to visit the HI group at the Necker Children’s Hospital in Paris. He met with Dr. Jean-Baptiste Arnoux, an HI doctor. He is part of Pr. De Lonlay’s HI medical group. Over … Read more