Julie Raskin Last Saturday was CHI Roller Coaster Day at Luna Park and it was a blast! It was a summery gorgeous day on the shores of the Atlantic Ocean. Luna Park is in Coney Island, Brooklyn right next to the beach, and is home to the historic wooden roller coaster, the Cyclone, built in 1927, as … Read more
The 2018 Congenital Hyperinsulinism Family Conference in Fort Worth, Texas organized by Cook Children’s and Congenital Hyperinsulinism International (CHI) took place over last weekend, July 27-29. 150 people gathered including kids with HI, their siblings, parents, physicians, researchers, and members of the Biotech industry. “Everything I heard this weekend was of benefit and provided me … Read more
HI Mom Sara Bernstein stars in this short video about what it is like to be the parent of a child with hyperinsulinism (HI). In “Sugar Baby” she shares scenes from her life, taking care of her children and the struggles to balance life and fulfil her desire to have some time for herself, to … Read more
Yesterday, Congenital Hyperinsulinism International (CHI) took part in The Million Dollar Bike Ride for Orphan Disease Research for the fifth consecutive year. Sunday, May 20, 2018 was another magical day! For those new to the event, it’s the day of the year when people living with rare diseases and their communities come together in Philadelphia … Read more
Our 2017 Grant Recipient, Diva De León, MD, MSCE, is Raring To Go for CHI! Are you? Read about the 2017 Congenital Hyperinsulinism Research Project funded by our Raring to Go for CHI Million Dollar Bike Ride team!