Julie Raskin Welcome to CHI! CHI is thrilled to announce Jacqueline Kraska will be joining the CHI team as the HI Global Registry Manager on September 26. We want to extend a very warm welcome to her. By way of introduction, Jacqui has the following message to the HI community: “Hi everyone, it is an absolute … Read more
Social Security Disability for Congenital Hyperinsulinism Most often, when people think of Social Security disability benefits, they think of a disabled worker who is unable to continue with his work duties and support his family. This is not always the case. There are many children that qualify for Social Security disability benefits because they were … Read more
Earlier this month, on Saturday, May 7, the Raring to Go for CHI team took part in the Million Dollar Bike Ride. Over 600 riders assembled in Philadelphia to ride bikes with the purpose of raising rare disease research funds. The CHI team was our biggest ever. Folks with congenital hyperinsulinism (HI) and their friends, … Read more
CHI is pumped to announce that once again we will be participating in the first Million Dollar Bike Ride sponsored by The Penn Medicine Orphan Disease Center on May 7, 2016. This event will raise awareness of rare diseases while raising funds for rare disease research. Our team, the “Raring to Go for CHI” team … Read more
Rare Disease Day 2016 is around the corner! Let’ share our Won’tcha Be my Sugar photos on Facebook, Twitter, and Instagram accounts in February and raise awareness of HI to save lives, end brain damage, and advocate for better treatments. Let’s also share our stories. The global theme this year is “Patient Voice.” Let’s make … Read more