Julie Raskin In honor of Rare Disease Day, February 28, 2015, Congenital Hyperinsulinism International (CHI) will be holding the inaugural Sugar Shindig in Austin, Texas in support of patients living with congenital hyperinsulinism (HI). This year, the theme of World Rare Disease Day is “Living with a Rare Disease: Day by Day, Hand in Hand.” The CHI … Read more
On November 8, 2014, CHI held the sweetest event in New York City, the Sugar Soiree, at the City Winery. CHI celebrated its “Sugar Babies” while raising awareness of the condition and funds for research, education, and support. Abby Huntsman, MSNBC’s Host of the Cycle, was the Master of Ceremonies for the evening. Dr. Charles … Read more
The Sweetest event in New York City, the Sugar Soiree, will take place at the City Winery in SoHo (https://congenitalhi.org/soiree/), tomorrow night. The event is being organized by Congenital Hyperinsulinism International (CHI), the organization dedicated to improving the lives of patients with the rare condition. For those with hyperinsulinism a spoonful of sugar plays a … Read more
As a result of all the bike riding and fundraising that took place earlier this year a new fund is born. The Center for Orphan Disease Research and Therapy, CODRT and CHI announce a Request for Applications (RFA) for a $60,000 a pilot grant for congenital hyperinsulinism research. CHI hopes to continue to partner with … Read more
On May 3, over 540 people rode their bikes in and around Philadelphia to raise money for rare disease research. In the process, the group of dedicated rare disease advocates raised over $1.4 million. Congenital Hyperinsulinism International (CHI) was one of 15 teams to participate in the race and the “Raring to Go for CHI” … Read more