As CHI’s Communications Associate, one of my primary roles is to elevate the patient voice in our hyperinsulinism advocacy work. Working digitally, though, can take me out of the real-life challenges that come along with HI management – I don’t see first-hand the daily inconveniences and anxieties around food, development, and mobility. At our most … Read more
I’m so glad we are going to Philadelphia and it isn’t for a doctor’s appointment, Ben said, as we were driving to that city for the Million Dollar Bike Ride. Driving South from New Jersey, there wasn’t much traffic and the weather was perfect. When we arrived in Philadelphia, we checked into our hotel, which … Read more
Congenital Hyperinsulinism International is excited to announce our newest member of our Board of Trustees, Justyna Montemurro BSN, RN! Justyna joins the board from New Jersey as a wife to Jeff Montemurro and mother to three children with the ABCC8 gene: Myla (10), Lucas (7), and Remy (3). Justyna has 10 years of experience as … Read more
Mothers of children with congenital hyperinsulinism (HI) have long contended there should be universal blood sugar screening for all newborns before they leave the hospital. Some pediatric endocrinologists who specialize in caring for babies and children with HI also believe current protocols for blood glucose screening of newborns are inadequate and must be changed. Now, … Read more
Congenital Hyperinsulinism International (CHI) continues to showcase the amazing work done by hyperinsulinism researchers, healthcare professionals, and drug developers through our Collaborative Research Network (CRN)! Earlier in May, CHI Chief Research Officer Tai Pasquini, PhD, attended the World Orphan Drug Congress in Boston, Massachusetts to highlight the work of the CHI CRN. The CHI Collaborative … Read more