116 people ordered Congenital Hyperinsulinism International T-shirts to wear today, Rare Disease Day, 2011. The fabulous “Be my sugar.” T-shirts, which are available at http://www.cafepress.com/Congenitalhyperins, were sported in many places around world, in English, French, and Spanish, from Australia, to Canada, to the U.S. We are looking forward to hearing all of your stories about … Read more
New Jersey Artist, Wendy Letven, has designed a line of t-shirts to help us raise awareness of HI. The shirts are amazing and can be purchased through Cafepress: http://www.cafepress.com/Congenitalhyperins. They are available in various styles and designs, and in sizes ranging from onesies (they are so cute!) to extra, extra large. It is our hope … Read more
The February 2011 issue of the medical journal, Seminars in Pediatric Surgery, is solely devoted to articles on congenital hyperinsulinism. This issue of the journal is an excellent resource on the disorder and it is online and available to all. While the journal is intended for people with a medical background, there are a number … Read more
Dear CHI Friends, I am writing to tell you about an excellent opportunity to spread awareness about HI and to share your opinions about the importance of information sharing for taking care of yourself or a child with HI. The attached electronic survey which is being conducted by NORD, the National Organization of Rare Diseases, … Read more
I read somewhere recently that the average person gains two pounds between Thanksgiving and New Year’s Day. Every year, this pesky little fact haunts our waistlines as November turns to December and then January. This seems like a big deal to those of us trying to wiggle into our holiday party finery. Yet, it’s really … Read more