Dear CHI Friends, I am writing to tell you about an excellent opportunity to spread awareness about HI and to share your opinions about the importance of information sharing for taking care of yourself or a child with HI. The attached electronic survey which is being conducted by NORD, the National Organization of Rare Diseases, … Read more
I read somewhere recently that the average person gains two pounds between Thanksgiving and New Year’s Day. Every year, this pesky little fact haunts our waistlines as November turns to December and then January. This seems like a big deal to those of us trying to wiggle into our holiday party finery. Yet, it’s really … Read more
Isabel Calderón, a member of the CHI Board of Directors from Canada, attended the Annual Congress of the Canadian Organization for Rare Disorders (CORD) held in Ottawa on October 1-2, 2010. A full two days of presentations and workshops made up the agenda. About 120 representatives from different Canadian rare disorder associations and individual patients … Read more
Last month I posted one of our brochures here on the blog. This month I am happy to announce that all of our CHI brochures are now available through the Documents link on the left hand side our main web site. Direct Link
Congenital Hyperinsulinism International (CHI) held the third Congenital Hyperinsulinism Family Conference on June 18th and 19th in San Diego. About 50 people gathered to learn together, share experiences and brainstorm about how to continue to spread awareness about congenital hyperinsulinism (HI) and advocate for people living with HI. The world’s leading specialists were among the … Read more