On Tuesday, Tai Pasquini, CHI’s Chief Research Officer attended the Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials in Washington, DC. The event was hosted by FARA, a rare disease patient organization, and Leavitt Partners, a law firm, along with stakeholders across the rare disease community. Prominent leaders from the FDA, NIH, … Read more
In our area of northern New Jersey, the Fourth of July parade is a lively, annual festival showcasing the work of various organizations; pre-schools and daycares, musical ensembles, sports teams, religious organizations, and volunteer groups will proudly march with their banners in-hand to share their passion with the community. It is a great small city … Read more
Congenital Hyperinsulinism International (CHI) continues to showcase the amazing work done by hyperinsulinism researchers, healthcare professionals, and drug developers through our Collaborative Research Network (CRN)! Earlier in May, CHI Chief Research Officer Tai Pasquini, PhD, attended the World Orphan Drug Congress in Boston, Massachusetts to highlight the work of the CHI CRN. The CHI Collaborative … Read more
At the “It Takes a Village” conversation about diabetes management, CHI was “driving” awareness and education about congenital hyperinsulinism! Our Development Director Diane Esty and Research Manager Mahlet (Mahi) Mesfin attended the event presented by the Diabetes Foundation, Hackensack Meridian Hospital’s Molly Center for Children, and the Bergen County School Nurses Association. Topics included communicating … Read more
As a global organization, our staff at Congenital Hyperinsulinism International (CHI) have opportunities to assist patients and doctors in faraway places. Every so often there is a nearby opportunity, allowing our staff to engage face-to-face within their home state. There is a special connection in getting to answer to the needs of the rare disease … Read more