In the News – Congenital Hyperinsulinism International

Researchers, Clinicians, and Patient Advocates Gather in Lisbon, Portugal to Chart a Better Future for People Living With Congenital Hyperinsulinism

March 12, 2025 by Julie Raskin

52 Heroic doctors, brilliant researchers, courageous parents, and a brave adult with HI spent two days in Lisbon, Portugal from February 28-March 2 working intently on making the future better for people with hyperinsulinism. The CHI Collaborative Research Network is a dynamic international collaboration of researchers, clinicians, and expert patient and caregiver advocates working together … Read more

Today is Rare Disease Day 2025

March 7, 2025February 28, 2025 by Julie Raskin

Wishing everyone in the rare disease community a Happy Rare Disease Day! Today is Rare Disease Day and it is celebrated around the world on the last day of February. For those with rare diseases, Rare Disease Day is the most important day of the year. It is a day to celebrate everyone who has … Read more

Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials

July 22, 2024 by Julie Raskin

On Tuesday, Tai Pasquini, CHI’s Chief Research Officer attended the Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials in Washington, DC. The event was hosted by FARA, a rare disease patient organization, and Leavitt Partners, a law firm, along with stakeholders across the rare disease community. Prominent leaders from the FDA, NIH, … Read more

A Passion for Fighting Food Insecurity Grows from Experience with Hyperinsulinism

July 10, 2024July 8, 2024 by Julie Raskin

looking for solution for food insecurity

In our area of northern New Jersey, the Fourth of July parade is a lively, annual festival showcasing the work of various organizations; pre-schools and daycares, musical ensembles, sports teams, religious organizations, and volunteer groups will proudly march with their banners in-hand to share their passion with the community. It is a great small city … Read more

Tai at World Orphan Drug Congress

May 24, 2024May 16, 2024 by Julie Raskin

Congenital Hyperinsulinism International (CHI) continues to showcase the amazing work done by hyperinsulinism researchers, healthcare professionals, and drug developers through our Collaborative Research Network (CRN)! Earlier in May, CHI Chief Research Officer Tai Pasquini, PhD, attended the World Orphan Drug Congress in Boston, Massachusetts to highlight the work of the CHI CRN. The CHI Collaborative … Read more