New Jersey Artist, Wendy Letven, has designed a line of t-shirts to help us raise awareness of HI. The shirts are amazing and can be purchased through Cafepress: http://www.cafepress.com/Congenitalhyperins. They are available in various styles and designs, and in sizes ranging from onesies (they are so cute!) to extra, extra large. It is our hope … Read more
This week sugar was in the news again. The price of sugar reached a new high on Thursday due to weather conditions in Australia that could have an effect on the supply of sugar worldwide. More relevant to us, news media sources reported on promising results in research studies on the artificial pancreas. This phase … Read more
Put down whatever it is you are doing and pick up the latest copy of the New Yorker, December 20-27, 2010. If you’re anything like me you’ll read the article entitled Mother Courage by John Colapinto and you’ll be moved. If I wanted to advocate for a better life for people born with congenital hyperinsulinism … Read more
Dear CHI Friends, I am writing to tell you about an excellent opportunity to spread awareness about HI and to share your opinions about the importance of information sharing for taking care of yourself or a child with HI. The attached electronic survey which is being conducted by NORD, the National Organization of Rare Diseases, … Read more
Isabel Calderón, a member of the CHI Board of Directors from Canada, attended the Annual Congress of the Canadian Organization for Rare Disorders (CORD) held in Ottawa on October 1-2, 2010. A full two days of presentations and workshops made up the agenda. About 120 representatives from different Canadian rare disorder associations and individual patients … Read more