A Chance to Take a Breath

HI Mom Sara Bernstein stars in this short video about what it is like to be the parent of a child with hyperinsulinism (HI). In “Sugar Baby” she shares scenes from her life, taking care of her children and the struggles to balance life and fulfil her desire to have some time for herself, to … Read more

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Rare Disease Patient Advocate Cristina Pindado Goes Back to School

Cristina Pindado, the mother of a child born with congenital hyperinsulinism (HI) is President of the the Spanish Association for those Affected by Congenital Hyperinsulinism (AFHICO). Cristina often collaborates with CHI representing HI advocacy, support, and research initiatives in Spain and all of Europe. In addition to being an active patient advocate, Cristina is highly … Read more

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Welcoming Jacqui to CHI!

Welcome to CHI! CHI is thrilled to announce Jacqueline Kraska will be joining the CHI team as the HI Global Registry Manager on September 26. We want to extend a very warm welcome to her. By way of introduction, Jacqui has the following message to the HI community: “Hi everyone, it is an absolute … Read more

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