Earlier this month, on Saturday, May 7, the Raring to Go for CHI team took part in the Million Dollar Bike Ride. Over 600 riders assembled in Philadelphia to ride bikes with the purpose of raising rare disease research funds. The CHI team was our biggest ever. Folks with congenital hyperinsulinism (HI) and their friends, … Read more
CHI is pumped to announce that once again we will be participating in the first Million Dollar Bike Ride sponsored by The Penn Medicine Orphan Disease Center on May 7, 2016. This event will raise awareness of rare diseases while raising funds for rare disease research. Our team, the “Raring to Go for CHI” team … Read more
Rare Disease Day 2016 is around the corner! Let’ share our Won’tcha Be my Sugar photos on Facebook, Twitter, and Instagram accounts in February and raise awareness of HI to save lives, end brain damage, and advocate for better treatments. Let’s also share our stories. The global theme this year is “Patient Voice.” Let’s make … Read more
XOMA employees raised $10,000 for CHI as part of their 2015 End of Year Donation Drive. This is the largest company donation drive organized for Congenital Hyperinsulinism International (CHI)! This donation is so important to CHI because donations like this help us to raise more awareness of the condition, and support more patients and research. … Read more
Congenital Hyperinsulinism International (CHI) is delighted to share the news that last Sunday evening, President of the Board of Directors, Dr. Davelyn Hood, and Secretary of the Board of Directors, Pam Williams, were both elected to a second two year term. CHI is so lucky that these two talented and committed board members are serving … Read more