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The National Organization of Rare Diseases (NORD) has created a collection of video clips about rare diseases. Last month they visited our family and filmed us as part of this collection. I am so pleased that Congenital Hyperinsulinism International is represented in this video collection and that NORD is promoting the importance of family support … Read more

An HI diagnosis is often a crisis for the family of a newly diagnosed child. The family must adapt to the responsibilities of caring for a child with very specific needs. To help new families cope with it all, CHI is embarking on a new program linking families of the newly diagnosed with experienced HI … Read more