Congenital Hyperinsulinism International
               

First Virtual Congenital Hyperinsulinism Family Conference, July 11-12, 2020

Congenital Hyperinsulinism International hosted our First Virtual Congenital Hyperinsulinism Family Conference on July 11-12, 2020 from 10:30 AM to 3:00 PM (EDT) each day.

420 people from 33 countries, a true worldwide HI community participated in the Conference. 38 speakers contributed to the live presentations, interactive Q & A, and small group discussions in breakout rooms. The conference also included videos, an exhibit hall, and even a live performance of our new HI song “Down and Up” by Janna Pelle.

You can view presentation slides from our conference presenters here.

Agenda Topics included:

  • HI Status Report from Diva D. De León-Crutchlow, MD, CHOP
  • HI Status Report from Paul Thornton, MD, Cook Children’s
  • Presentations from Biopharmaceutical Companies
  • Coping with the Stress of Parenting a Child with Complex Medical issues
  • HI Global Registry – Patient Powered Research
  • HIStories – Patient Experience Videos by HI Families
  • Ask the Experts (HI Expert Clinicians/Physicians and Geneticists)
  • Ask the Experts about HI Research (Biotechs and expert academic researchers, and HIGR)

2020 Virtual Conference


Small group breakout sessions included:

Gathering by HI Type/Professionals in Virtual Breakout Rooms

  • Diazoxide-Responsive Diffuse*
  • Diffuse Non-Diazoxide Responsive*
  • HI/HA*
  • Focal*
  • Post-pancreatectomy Diabetes/Pancreatic insufficiency*
  • The Genetics of Hyperinsulinism*
  • Managing Hypoglycemia/A breakout room for clinicians++

Gathering by HI Issues or Stage of Life/Professionals in Virtual Breakout Rooms

  • Infants and Toddlers with HI*
  • Developmental Delays*
  • Managing HI at School*
  • HI Teenagers*
  • Living with HI as an Adult*
  • Feeding and Nutrition*
  • Medication/Treatment Access Issues/A Breakout Room for Clinicians++



Confirmed Panelists, Presenters and Facilitators:

Amanda Ackermann, MD, PhD
Children’s Hospital of Philadelphia (CHOP), PA USA

Seungjae Baek, MD, PhD
Hanmi Pharmaceuticals, Seoul, Korea

Indi Banerjee, MD
Royal Manchester Childrens Hospital, Manchester, UK

Sarah Barnes, MS, RD, CSP, LDN
CHOP, PA, USA

Linda Boyajian, CRNP
CHOP, PA, USA

Sherri Cohen, MD, MPH, FAAP, LDN
CHOP, PA, USA

Louise Conwell, MBBS(Hons), PhD
Queensland Children’s Hospital / University of Queensland, Australia

Ed Damiano
Beta Bionics, MA, USA

Antonia Dastamani, MD
Great Ormond Street Hospital (GOSH), London, UK

Louise Doodson, Clinical Nurse Specialist
GOSH, London, UK

Mark Dunne, PhD
University of Manchester Hyperinsulinism Center, Manchester, UK

Diva D. De León-Crutchlow, MD, MSCE
CHOP, PA, USA

Ranna El Khairi, MD
GOSH, London, UK

Jordan Evans, RN
CHOP, PA, USA

Christine Ferrara-Cook, MD, PhD
Crinetics Pharmaceuticals, CA, USA

Sarah Flanagan, PhD
University of Exeter, UK

Julie M. Gettings, Ph.D.
CHOP, PA, USA

Clare Gilbert, Clinical Nurse Specialist
GOSH, London, UK

Davelyn Hood, MD, MBA
CHI, TX, USA

Katherine Lord, MD
CHOP, PA, USA

Asim Maqbool, MD
CHOP, PA, USA

Heather McKnight-Menci, CRNP
CHOP, PA, USA

Maria Melikian, MD, PhD
Endocrinology Research Centre, Moscow, Russia

Klaus Mohnike, MD
Otto-von-Guericke-Universität Magdeburg, Germany

Kate Morgan, Clinical Nurse Specialist
GOSH, London, UK

Erin O’Boyle,
Rezolute, CA, USA

Tai Pasquini, PhD
CHI, MA, USA

Janna Pelle
CHI, NY, USA

Catherine Peters, MD
GOSH, London, UK

Julie Raskin
Conference Director
CHI, NJ, USA

Courtney Reynolds, MPH
Cook Children’s, Fort Worth, TX

Jennifer Schmitt
Conference Associate Director
CHI, NJ, USA

Senthil Senniappan
Alder Hey Hospital, Liverpool, UK

Pratik Shah, MD
Royal London Children’s Hospital
Barts Health NHS Trust, London, UK

Winifred Sigal, MD
CHOP, PA, USA

Charles Stanley, MD
CHOP, Emeritus, Philadelphia, PA, USA

Nicole Stewart, RN
CHOP, PA, USA

Paul Thornton, MD
Cook Children’s Hospital, Fort Worth, TX, USA



Rezolute sponsors the Virtual Family Conference

Sweetest Sponsor

Crinetics Sponsors the 2020 Virtual Conference

Platinum Sponsor

Zealand sponsors 2020 Virtual Conference

Platinum Sponsor


Hanmi sponsors the CHI virtual conference

Gold Sponsor

Beta Bionics sponsor Virtual Conference

Silver Sponsor

Amidebio sponsor of 2020 Virtual Conference

Bronze Sponsor

Chan Zuckerberg Rare As One Network