Julie Raskin

It Takes a Village: Diane and Mahi attend Diabetes Foundation information session

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CHI with Diabetes Foundation

At the “It Takes a Village” conversation about diabetes management, CHI was “driving” awareness and education about congenital hyperinsulinism! Our Development Director Diane Esty and Research Manager Mahlet (Mahi) Mesfin attended the event presented by the Diabetes Foundation, Hackensack Meridian Hospital’s Molly Center for Children, and the Bergen County School Nurses Association. Topics included communicating … Read more

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Tai visits the Massachusetts State House

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Tai from CHI at Massachusetts State House

As a global organization, our staff at Congenital Hyperinsulinism International (CHI) have opportunities to assist patients and doctors in faraway places. Every so often there is a nearby opportunity, allowing our staff to engage face-to-face within their home state. There is a special connection in getting to answer to the needs of the rare disease … Read more

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Trudy Ward joins CHI Board of Trustees!

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Trudy Ward joins CHI Board

Congenital Hyperinsulinism International is thrilled to welcome Trudy Ward MSc; RNChild; RNAdult; Queens Nurse to our Board of Trustees. Trudy joins the Board as a parent of two grown daughters in Brighton, England, one of whom lives with congenital hyperinsulinism and is now 25 years old. Her partner, Janet Lee, is also a member of … Read more

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Julie’s Rare Disease Day

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Rare Disease Day 2024

This is the 13th year I have celebrated Rare Disease Day, but it never gets old. Each year brings a yearning for advancements in access to existing treatments and the development and availability of new treatments and cures for all living with rare diseases. As the rare disease community shares every year, taken together, rare … Read more

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Natural History Repeats Itself

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Natural History Repeats Itself: My journey promoting and participating in natural history studies When I first heard the words “natural history study,” the only thing that came to mind was the Museum of Natural History – and I had no idea if the two “natural histories” were related in any way. Now, I understand why … Read more

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