Julie Raskin 
The 2025 CHI Family Conference in Philadelphia happened to be held during a gorgeous stretch of weather. Jennifer Schmitt, CHI’s COO, and I traveled together by car from Glen Ridge, NJ, arriving around noon on October 3, ready to set up at the Philadelphia Sheraton University City on the edge of the Penn campus and … Read more
I am so sad to share the news that Jim Nestor died last week, on September 10, 2025. His death is a huge loss, first and foremost for his family, and all his loved ones, but also for the congenital hyperinsulinism (HI) family community. It is like yesterday that I got a phone call from … Read more
Read this post in Italian. My name is Martina Sena, and I’m a mother to a beautiful three-year-old girl named Gioia. I’m also an intensive care nurse. You would think my professional background would have prepared me for anything, but nothing could have prepared me for the journey we began when Gioia was just five … Read more
The following has been shared by Anna Nicolaou: Within the medical world, there’s positive progress being made on a daily basis for a variety of things such as research and new forms of medicine. However, when it comes to correct diagnosis and transition from a pediatric health care team to an adult health care team, the … Read more
Ben Raskin-Gross and Julie Raskin participated in Rare Across America initiative sponsored by the EveryLife Foundation. This initiative empowers advocates to meet with the staff of members of Congress at their local district offices. Ben and Julie shared their personal stories and advocated for issues of great importance for the congenital hyperinsulinism and broader rare … Read more