Julie Raskin 116 people ordered Congenital Hyperinsulinism International T-shirts to wear today, Rare Disease Day, 2011. The fabulous “Be my sugar.” T-shirts, which are available at http://www.cafepress.com/Congenitalhyperins, were sported in many places around world, in English, French, and Spanish, from Australia, to Canada, to the U.S. We are looking forward to hearing all of your stories about … Read more
New Jersey Artist, Wendy Letven, has designed a line of t-shirts to help us raise awareness of HI. The shirts are amazing and can be purchased through Cafepress: http://www.cafepress.com/Congenitalhyperins. They are available in various styles and designs, and in sizes ranging from onesies (they are so cute!) to extra, extra large. It is our hope … Read more
This week sugar was in the news again. The price of sugar reached a new high on Thursday due to weather conditions in Australia that could have an effect on the supply of sugar worldwide. More relevant to us, news media sources reported on promising results in research studies on the artificial pancreas. This phase … Read more
The February 2011 issue of the medical journal, Seminars in Pediatric Surgery, is solely devoted to articles on congenital hyperinsulinism. This issue of the journal is an excellent resource on the disorder and it is online and available to all. While the journal is intended for people with a medical background, there are a number … Read more
Rare Disease Day is February 28, 2011. This is our day to grab the spotlight and focus the world’s attention on rare diseases, specifically, our disease: Congenital Hyperinsulinism (HI). We have 45 days to plan our strategy so we can make the most of this day. I had the pleasure of visiting the National Organization … Read more