Due to the rarity of congenital hyperinsulinism, finding health care facilities and personnel with experience in treating patients with the condition can be a major challenge. Congenital Hyperinsulinism International (CHI) seeks to make that search easier with tools and information on leading centers of hyperinsulinism treatment and research. In addition to providing information on leading … Read more
Rianna Sommers, Senior at Muhlenberg College and Congenital Hyperinsulinism International Intern, produced a short documentary film, Hyperinsulinism, Patient Stories, with messages from children and their families living in various locales around the world with congenital hyperinsulinism (HI). The film includes excerpts produced by the families themselves describing the experience of living with the condition, in … Read more
CHI is pumped to announce we will be participating in the first Million Dollar Bike Ride sponsored by The Penn Medicine Center for Orphan Disease Research and Therapy (CODRT) on May 3, 2014. This event will raise awareness of rare diseases while raising funds for rare disease research. Our team, the “Raring to Go for … Read more
For those who were newly diagnosed this year and their families, Congenital Hyperinsulinism (HI) began with a major crisis. There was the terrible moment when something was found to be wrong, followed by a diagnostic process, the search for physicians and nurses who understood the condition, the hunt for an effective medication, and sometimes surgery, … Read more
Congenital Hyperinsulinism International (CHI) held the Fifth Congenital Hyperinsulinism Family Conference at the NH Milano 2 Hotel in Segrate, Italy just outside of Milan on September 17 and 18, 2013. It was an intensive two days of presentations on many aspects of congenital hyperinsulinism, from the experience of living with the condition, to the latest … Read more