The Sweetest event in New York City, the Sugar Soiree, will take place at the City Winery in SoHo (https://congenitalhi.org/soiree/), tomorrow night. The event is being organized by Congenital Hyperinsulinism International (CHI), the organization dedicated to improving the lives of patients with the rare condition. For those with hyperinsulinism a spoonful of sugar plays a … Read more
As a result of all the bike riding and fundraising that took place earlier this year a new fund is born. The Center for Orphan Disease Research and Therapy, CODRT and CHI announce a Request for Applications (RFA) for a $60,000 a pilot grant for congenital hyperinsulinism research. CHI hopes to continue to partner with … Read more
A raw, biting and cold wind whipped through Trenton, the State Capitol of New Jersey, on March 13, the day Rare New Jersey organized important events in the Capitol to raise awareness of rare diseases. This unusual weather did not dampen the spirit or hinder people–some with significant physical and medical challenges–from making the trip … Read more
Sarah Bates is married to Kenn Bates, born with congenital hyperinsulinism (HI) and is the mother of Rachel, a child with the condition. Sarah is also Parent Research Coordinator for the CHI website. Sarah was recently at the Children’s Hospital of Philadelphia (CHOP) with her daughter who was taking part in a research study on … Read more
Due to the rarity of congenital hyperinsulinism, finding health care facilities and personnel with experience in treating patients with the condition can be a major challenge. Congenital Hyperinsulinism International (CHI) seeks to make that search easier with tools and information on leading centers of hyperinsulinism treatment and research. In addition to providing information on leading … Read more