Isabel Calderón, a member of the CHI Board of Directors from Canada, attended the Annual Congress of the Canadian Organization for Rare Disorders (CORD) held in Ottawa on October 1-2, 2010. A full two days of presentations and workshops made up the agenda. About 120 representatives from different Canadian rare disorder associations and individual patients … Read more
Carriers of a genetic mutation caused by the ABCC8 gene which can result in children with congenital hyperinsulinism (HI), can now be tested at fertility clinics in many locations around the country through a simple saliva test. The test, made by a California company, Counsyl, actually screens for 100 different rare disorders including HI. An … Read more
Qualitest Pharmaceuticals in Huntsville, Alabama, USA has announced a recall of 250 million insulin syringes. If the needle becomes detached from the syringe during use, it can become stuck in the insulin vial, push back into the syringe, or remain in the skin after an injection, the company said. Consumers who have these products should … Read more
Euglycemia, or a normal concentration of sugar in the blood, is an important goal for all people living with congenital hyperinsulinism (HI). A reliable glucometer, a device that measures the concentration of glucose in the blood is an important tool helping those with HI achieve euglycemia. One of the ongoing issues for those that use … Read more