L’agenda de la 5e Conférence familiale d’hyperinsulinisme congénital
L’agenda de la 5e Conférence familiale d’hyperinsulinisme congénital est maintenant disponsible en français. 17-18 septembre 2013 Hôtel NH Milano 2 Segrate, Italie
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CHI Milan Conference Agenda Now Available
The Agenda for the HI Family Conference is now available! The conference will take place in Segrate, Italy on September 17 and 18, 2013. The dates and location have been chosen to coincide with the Joint Meeting of Pediatric Endocrinologists which will be held later the same week in Milan. The Joint Meeting occurs every 4 years … Read more
The Boston Marathon: Running for Rare Diseases
Jen was running toward us, her arms spread out like wings. We had been waiting for this moment for hours, for Jen to run on by. But she didn’t. She sacrificed some seconds from her time to stop and give us all hugs. That’s just like Jen Tedstone. So full of love and energy that … Read more
CHI Collaborates with Rare Disease Patient Groups in New Jersey
Last Monday, March 4, Congenital Hyperinsulinism International and thirteen other patient organizations presented a program aimed at raising awareness in the state of New Jersey of the plight of people living with rare diseases. NORD and BioNJ, the Biotech trade organization for New Jersey, supported our efforts to deliver this presentation which took place at … Read more
“A Wonderful Night for a Great Cause”
On February 28, 2013, Congenital Hyperinsulinism International held its second “rare” event in honor of the 6th Rare Disease Day in Montclair, New Jersey at the historic and beautiful Van Vleck House. The purpose of “A Very Special Cocktail Party” was threefold: to raise awareness of the needs of all rare disease patients, to share … Read more