Congenital Hyperinsulinism International

Presentations from the 2018 Athens Family Conference

2018 Athens Presentations

Please find 32 presentations given at the 2018 Family Conference in Athens:

The role of insulin in HIThe Role of Insulin and Mechanism of Disease in Congenital Hyperinsulinism
A presentation by Indi Banerjee from the Royal Manchester Children’s Hospital.
Click on the image at left or click here for the PDF version of this presentation.

Evaluation and Management of HypoglycemiaRecommendations for Evaluation and Management of Hypoglycemia in Neonates, Infants, and Children
A presentation by Dr. Paul Thornton, MD, Medical Director of the Hyperinsulinism Center at Cook Children’s Medical Center.
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The Genetics of CHIGenetics of CHI
A presentation by Sian Ellard, Consultant Clinical Scientist of Professor of Genomic Medicine at the University of Exeter Medical School.
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feeding issues and nutrition HIFeeding Issues and Nutrition
A presentation by Clare Gilbert, Clinical Nurse Specialist at Great Ormond Street Hospital for Children.
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CHI treatmentCongenital Hyperinsulinism – Treatment
A presentation by Senthil Senniappan, MD, FRCPCH, PhD, a Consultant Paediatric Endocrinologist & Honorary Senior Lecturer at the Alder Hey Children’s Hospital, Liverpool, UK.
Click on the image at left or click here for the PDF version of this presentation.

lecture on medical treatment for HIMedical Treatment for Congenital HI, Part 1
A presentation by Charles A. Stanley, MD, from the Children’s Hospital of Philadelphia.
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Helena's story of HIHelena’s CHI Story: Congenital Hyperinsulinism Triumphs and Challenges
A presentation by a family sharing their triumphs and challenges with HI.
Click on the image at left or click here for the PDF version of this presentation.

growing up with HIGrowing Up: Managing HI through the teen years.
A presentation by a young woman named Connie detailing her experiences growing up with HI.
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managing HI at daycare and schoolManaging HI at School and Daycare
A presentation by parent Cristina Pindado.
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what's new with devices for HIWhat’s new with devices, glucometers and Continuous Glucose Monitoring systems
A presentation by Madhini Sivasubramanian from the Great Ormond Street Hospital for Children.
Click on the image at left or click here for the PDF version of this presentation.

sick day management for HISick Day Management – How to manage intercurrent illness?
A presentation by Dr. Sebastian Kummer, Department of General Pediatrics, Neonatology and Pediatric Cardiology at the University Children’s Hospital Düsseldorf, Germany.
Click on the image at left or click here for the PDF version of this presentation.

the burden of HIThe psychological burden of congenital hyperinsulinism
A presentation by Clare Gilbert and Hannah Antell from the Great Ormond Street Hospital fo Children.
Click on the image at left or click here for the PDF version of this presentation.

coping strategies for HICoping Strategies for Managing the Stress of Caring for Children with Complex Medical Needs
A presentation by Irene Promussas, PhD.
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psychological burden of HIThe Psychological Burden of Congenital Hyperinsulinism: A Global Insult to the Family
A presentation by Julie Raskin, Executive Director, Congenital Hyperinsulinism International.
Click on the image at left or click here for the PDF version of this presentation.

neurological impact HINeurological Impact of Congenital Hyperinsulinism
A presentation by Diva De Leon of the Children’s Hospital of Philadelphia and Indi Banerjee of the Royal Manchester Children’s Hospital.
Click on the image at left or click here for the PDF version of this presentation.

transition to adult care for HITransition from Paediatric to Adult care in Congenital Hyperinsulinism
A presentation by Dr. Pratik Shah, Consultant Paediatric Endocrinologist and Honorary Clinical Lecturer from the Great Ormond Street Hospital for Children & UCL Great Ormond Street Institute of Child Health.
Click on the image at left or click here for the PDF version of this presentation.

recent research HIRecent Research – A new form of syndromic CHI?
A presentation by Dr. Sebastian Kummer, Department of General Pediatrics, Neonatology and Pediatric Cardiology at the University Children’s Hospital Düsseldorf, Germany.
Click on the image at left or click here for the PDF version of this presentation.

HI - a continuous challengeCHI: A continuous challenge
A presentation by Henrik Christesen, Professor, PhD, MD, International Hyperinsulinism Centre, Hans Christian Andersen Children’s Hospital, Odense University Hospital, Denmark.
Click on the image at left or click here for the PDF version of this presentation.

HI case studiesCongenital Hyperinsulinism Case Studies: variability of phenotype and response to medical therapy
A presentation by Evelina Panou, Division of Endocrinology, Metabolism and Diabetes,
First Department of Pediatrics, Medical School, National and Kapodistrian University of Athens, “Agia Sophia” Children’s Hospital, Athens, Greece.
Click on the image at left or click here for the PDF version of this presentation.

the hi global registryThe HI Global Registry: Patient-Powered Research Connecting All HI Stakeholders
A presentation by Davelyn Hood, MD, President of the Board of Directors, Congenital Hyperinsulinism International.
Click on the image at left or click here for the PDF version of this presentation.

Ulrike Seyfarth presentationParticipation and Empowerment of Kids with Congenital Hyperinsulinism
A presentation by Ulrike Seyfarth, President, Kongenitaler Hyperinsulinismus e.V., Berlin, Germany.
Click on the image at left or click here for the PDF version of this presentation.

NORCHI ResearchResearch at Manchester, UK
A presentation by Indi Banerjee and Mark Dunne, University of Manchester, Royal Manchester Children’s Hospital.
Click on the image at left or click here for the PDF version of this presentation.

Cook Childrens HI ProgramCook Children’s Hyperinsulinism Program
A presentation by Paul Thornton, MD, Cook Children’s Health Foundation.
Click on the image at left or click here for the PDF version of this presentation.

hyperinsulinism researchHyperinsulinism Research
A presentation by Charles A. Stanley, MD, Congenital Hyperinsulinism Center, The Children’s Hospital of Philadelphia.
Click on the image at left or click here for the PDF version of this presentation.

lanreotide and HIUse of Long-Acting Somatostatin Analogue (Lanreotide) in three children with Focal Forms of Congenital Hyperinsulinaemic Hypoglycaemia
A presentation by Dr. Antonia Dastamani, Clinical Fellow in Congenital Hyperinsulinism,
Great Ormond Street Hospital.
Click on the image at left or click here for the PDF version of this presentation.

HI awarenessCongenital Hyperinsulinism Awareness, Family Support, Research
A presentation by Julie Raskin, Executive Director, Congenital Hyperinsulinism International.
Click on the image at left or click here for the PDF version of this presentation.

challenges for physiciansPatients with Congenital Hyperinsulinism in resource limited settings – Challenges for the physicians
A presentation by Nino Kheladze, MD, M. Iashvili Children’s Central Hospital, Tbilisi, Georgia.
Click on the image at left or click here for the PDF version of this presentation.

Zealand Pharma2018 Congenital Hyperinsulinism Family Conference Industry Highlight Section
A presentation by Klara Owen, MD, PhD., MSc., Zealand Pharma A/S, Denmark.
Click on the image at left or click here for the PDF version of this presentation.

Post-prandial hyperinsulinaemic hypoglycaemiaPost-prandial hyperinsulinaemic
hypoglycaemia after oesophageal surgery in children

A presentation by Dr. Antonia Dastamani, Clinical Fellow in Congenital Hyperinsulinism, Great Ormond Street Hospital.
Click on the image at left or click here for the PDF version of this presentation.

Warm greetings from Winfried Greifswald, GermanyWarm greetings from Dr. Winfried Barthlen, sent from Greifswald, Germany
Dr. Winfried Barthlen, Chief of Pediatric Surgery in Greifswald, Germany, was unable to attend the conference in Athens.
He sent us this presentation and requested we post it as a resource.
Click on the image at left or click here for the PDF version of this presentation.

Isreali HI ExperienceCHI 2018 Athens– Israeli Experience use of pumps and glucose sensors and some new thoughts
A presentation by David Zangen MD, Division of Pediatric Endocrinology, Hadassah Hebrew University Medical Center, Jerusalem, Israel.
Click on the image at left or click here for the PDF version of this presentation.

Xeris Presentation AthensLiquid Stable Glucagon for Congenital Hyperinsulinism
A presentation by Khaled Junaidi, MD, Medical Director at Xeris Pharmaceuticals, Inc.
Click on the image at left or click here for the PDF version of this presentation.

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