Due to the rarity of congenital hyperinsulinism, finding health care facilities and personnel with experience in treating patients with the condition can be a major challenge. Congenital Hyperinsulinism International (CHI) seeks to make that search easier with tools and information on leading centers of hyperinsulinism treatment and research. In addition to providing information on leading … Read more
CHI is pumped to announce we will be participating in the first Million Dollar Bike Ride sponsored by The Penn Medicine Center for Orphan Disease Research and Therapy (CODRT) on May 3, 2014. This event will raise awareness of rare diseases while raising funds for rare disease research. Our team, the “Raring to Go for … Read more
Congenital Hyperinsulinism International (CHI) held the Fifth Congenital Hyperinsulinism Family Conference at the NH Milano 2 Hotel in Segrate, Italy just outside of Milan on September 17 and 18, 2013. It was an intensive two days of presentations on many aspects of congenital hyperinsulinism, from the experience of living with the condition, to the latest … Read more
Dr. Khalid Hussain, a leading pediatric endocrinologist specializing in congenital hyperinsulinism (HI) presented information on the use of long-acting octreotide as a medical therapy for patients with HI at the Congenital Hyperinsulinism International Endocrine Society Meeting in Berkeley, California on June 15, 2013. Dr. Hussain presented information on published studies and on an ongoing study … Read more
L’agenda de la 5e Conférence familiale d’hyperinsulinisme congénital est maintenant disponsible en français. 17-18 septembre 2013 Hôtel NH Milano 2 Segrate, Italie