Over 30,000 people will run 26.2 miles in the Boston Marathon tomorrow and CHI is in awe of all the runners, but there is one in particular we are especially focused on and proud of. Melissa Halstead is running as part of the Genzyme/NORD Running for Rare Diseases Program (RFR) and she is running for … Read more
Congenital Hyperinsulinism International (CHI) is pleased to announce that Dr. Diva DeLeon has been awarded a pilot grant in the amount of $60,000 to determine the efficacy of sirolimus in controlling hypoglycemia in infants with KATP hyperinsulinism (HI). The grant is awarded by the Orphan Disease Center of the University of Pennsylvania. The funds for … Read more
In honor of Rare Disease Day, February 28, 2015, Congenital Hyperinsulinism International (CHI) will be holding the inaugural Sugar Shindig in Austin, Texas in support of patients living with congenital hyperinsulinism (HI). This year, the theme of World Rare Disease Day is “Living with a Rare Disease: Day by Day, Hand in Hand.” The CHI … Read more
On November 8, 2014, CHI held the sweetest event in New York City, the Sugar Soiree, at the City Winery. CHI celebrated its “Sugar Babies” while raising awareness of the condition and funds for research, education, and support. Abby Huntsman, MSNBC’s Host of the Cycle, was the Master of Ceremonies for the evening. Dr. Charles … Read more
The Sweetest event in New York City, the Sugar Soiree, will take place at the City Winery in SoHo (https://congenitalhi.org/soiree/), tomorrow night. The event is being organized by Congenital Hyperinsulinism International (CHI), the organization dedicated to improving the lives of patients with the rare condition. For those with hyperinsulinism a spoonful of sugar plays a … Read more