The following has been shared by Anna Nicolaou: Within the medical world, there’s positive progress being made on a daily basis for a variety of things such as research and new forms of medicine. However, when it comes to correct diagnosis and transition from a pediatric health care team to an adult health care team, the … Read more
Hello, my name is Julie, and I am currently a senior at the University of Pittsburgh! Admittedly, receiving the initial diagnosis of Congenital Hyperinsulinism (HI) impacted my parents more than me; however, the notion of being a “mystery child” has always been something I’ve wrestled with. Growing up, I knew that I was “different”. Other … Read more
From Birth to Diagnosis: Camilla’s Tough Start We are an international family living in Denmark. I’m a Chinese mother, and my husband is Danish. Our first daughter, Camilla, was born in January 2021. During my pregnancy, there were some unusual signs. Camilla’s heartbeat was slightly higher than normal at 35 weeks, and I was suspected … Read more
(The following is shared by HI parent Felicia Huffman:) When my daughter, Jilani Rose, was diagnosed with congenital hyperinsulinism (HI) as a baby, our world changed overnight. She underwent a 98% pancreatectomy — a lifesaving procedure that came with a lifelong consequence: the development of insulin-dependent diabetes. We’ve come to view this transition through both … Read more
Ricky is an energetic, larger than life 8-year-old who loves Boy Scouts, Minecraft, gaming, building, music, and most importantly, being a big brother to his brother Michael. He is the most empathetic person you will ever meet, constantly trying to help and put a smile on your face, especially when he realizes you could use … Read more