HI-stories Archives - Congenital Hyperinsulinism International

Julie’s HI-Story

July 16, 2025 by Lily Barnett

Julie HI-Story, sharing experience of hyperinsulinism

Hello, my name is Julie, and I am currently a senior at the University of Pittsburgh! Admittedly, receiving the initial diagnosis of Congenital Hyperinsulinism (HI) impacted my parents more than me; however, the notion of being a “mystery child” has always been something I’ve wrestled with. Growing up, I knew that I was “different”. Other … Read more

Camilla’s Journey with HI

July 3, 2025 by Lily Barnett

Family sharing their Hyperinsulinism story

From Birth to Diagnosis: Camilla’s Tough Start We are an international family living in Denmark. I’m a Chinese mother, and my husband is Danish. Our first daughter, Camilla, was born in January 2021. During my pregnancy, there were some unusual signs. Camilla’s heartbeat was slightly higher than normal at 35 weeks, and I was suspected … Read more