The 2018 Congenital Hyperinsulinism Family Conference in Fort Worth, Texas organized by Cook Children’s and Congenital Hyperinsulinism International (CHI) took place over last weekend, July 27-29. 150 people gathered including kids with HI, their siblings, parents, physicians, researchers, and members of the Biotech industry. “Everything I heard this weekend was of benefit and provided me … Read more
HI Mom Sara Bernstein stars in this short video about what it is like to be the parent of a child with hyperinsulinism (HI). In “Sugar Baby” she shares scenes from her life, taking care of her children and the struggles to balance life and fulfil her desire to have some time for herself, to … Read more
Combining her personal experience with medical knowledge, Aubrey Tell, HI mom and family practice doctor, has created a presentation about HI for medical residents: “I think the most important thing we can do is educate people that HI exists, and if there are any symptoms of hypoglycemia in a neonate, even if they don’t have … Read more
Cristina Pindado, the mother of a child born with congenital hyperinsulinism (HI) is President of the the Spanish Association for those Affected by Congenital Hyperinsulinism (AFHICO). Cristina often collaborates with CHI representing HI advocacy, support, and research initiatives in Spain and all of Europe. In addition to being an active patient advocate, Cristina is highly … Read more
The CHI Team is proud to announce our new Program Manager, Katherine Hinchliffe! “I am so thrilled to be joining the staff of CHI.” Katherine has been a volunteer with CHI for 6 years and first became involved through her relationship with a CHI family. We are thrilled to have her! “I’ve been honored … Read more