From Birth to Diagnosis: Camilla’s Tough Start We are an international family living in Denmark. I’m a Chinese mother, and my husband is Danish. Our first daughter, Camilla, was born in January 2021. During my pregnancy, there were some unusual signs. Camilla’s heartbeat was slightly higher than normal at 35 weeks, and I was suspected … Read more
Congenital Hyperinsulinism International (CHI) will be working with a documentary film crew to produce a short film on living with congenital hyperinsulinism. The purpose of the film is to increase awareness of the condition. The film will be part of our public awareness campaign. This is a casting call for the film! We are looking … Read more
Can personal stories drive change in newborn screening practices? “It’s appalling that the fate of a newborn is in the hands of a postpartum mother who doesn’t understand the signs her newborn is giving her, that he’s not getting the sugar he needs … It shouldn’t be on her to save his brain.” That is … Read more
In our area of northern New Jersey, the Fourth of July parade is a lively, annual festival showcasing the work of various organizations; pre-schools and daycares, musical ensembles, sports teams, religious organizations, and volunteer groups will proudly march with their banners in-hand to share their passion with the community. It is a great small city … Read more
Today is a special day in the annals of congenital hyperinsulinism (HI) families. It is the 20th anniversary of the very first message sent to members of the Hyperins Yahoo Group. This group provided a method of efficient communication via email for families living with HI. On June 4, 1999, Jim Nestor, the moderator of … Read more